Breaking news from all around the world in #sicklecell disease.
Stem Cell Transplant
Adult Successful stem cell transplant of 12 adults with sibling matches (half-match) at University of Illinois Hospital & Health Sciences, Chicago. 92% cure rate, 1 reversal (that patient did not follow protocol post-transplant). Great news! Read more
Wait Times in Emergency Department
Boston Medical Center has reduced wait times in the ED for #sicklecell patients from over an hour to 23 minutes. If they can do it…all ED’s should be able to do so and improve quality of care for SCD patients. Read more:
Gene Editing/Gene Therapy Research
Scientists have found the modifier that triggers production of fetal hemoglobin in the DNA strand. One step closer to a universal cure…
In Nigeria, Zahra Buhari (presiden’ts daughter) has signed on to be the brand ambassador of the Sickle Cell Aid Foundation (SCAF) based in Abuja, Nigeria. Her sister died from #sicklecell. Great job using her platform for something positive.