IN THE NEWS: September 2015 Edition


Breaking news from all around the world in #sicklecell disease.

Stem Cell Transplant

Adult Successful stem cell transplant of 12 adults with sibling matches (half-match) at University of Illinois Hospital & Health Sciences, Chicago. 92% cure rate, 1 reversal (that patient did not follow protocol post-transplant). Great news! Read more

Wait Times in Emergency Department

Boston Medical Center has reduced wait times in the ED for ‪#‎sicklecell‬ patients from over an hour to 23 minutes. If they can do it…all ED’s should be able to do so and improve quality of care for SCD patients. Read more:

Boston Medical Center has significantly reduced the amount of time that pediatric patients experiencing pain from sickle cell disease (SCD) wait before receiving…

Gene Editing/Gene Therapy Research

Scientists have found the modifier that triggers production of fetal hemoglobin in the DNA strand. One step closer to a universal cure…

Gene-editing study reveals pathway that could help short circuit sickle cell disease.

International News

In Nigeria, Zahra Buhari (presiden’ts daughter) has signed on to be the brand ambassador of the Sickle Cell Aid Foundation (SCAF) based in Abuja, Nigeria. Her sister died from ‪#‎sicklecell‬. Great job using her platform for something positive.

Zahra Buhari is the Brand Ambassador to the Sickle Cell Aid Foundation (SCAF) | Photos 21.09.2015 at 7:46 am By Leave a Comment Zahra…


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