World Sickle Cell Day Festival is June 19!!!—that’s tomorrow! Date: Friday, June 19th, 2009 Time: 10:00AM to 6:00PM Place: Dag Hammarskjold Plaza 47th Street (Between 1st & 2nd Ave) New York, NY 10017 Event: “World Sickle Cell Day” with special guest Ruben Studdard (American Idol winner) and many others The Queens Sickle Cell Advocacy Network, […]
World Sickle Cell Fest in NY! Read More »
Hello everyone, I’ve been digress in mentioning a few snags that have hit Nicosan. I’ve gotten several emails over the past few weeks that have alarmed me as well as sent me for more information. As many of you might know, Xechem USA filed for bankruptcy last year. Currently there is pending litigation about the
My sister sent this to me from a friend of a friend. Guess Sickle Cell is in the eye of our new president after all! Hi All, In our continuing efforts to spread awareness about Sickle Cell Disease…Gabriel and I got to meet with Pres. Obama on this past Tuesday! Can you say WHAT A
Sickle Cell & President Obama Read More »
Hey everyone. I just got this link on some research conducted at John Hopkins University related to sickle cell. The article talks about Chemotherapy as the new adjunct therapy in BMT patients…feel free to go ahead and read it. According to Sophie Lanzkron, director of the Sickle Cell Center for Adults at Johns Hopkins University,
Bone Marrow Transplant + Chemo is the new Cure Read More »
This is not my research, therefore I do not have additional information about this project. It is being conducted by Kimberly Grace, a PhD student at Alliant International University. For questions and contact information, please click the link to the survey. For anyone over 18 with sickle cell, please consider participating in this project. It
Hey everyone, I’m seriously trying to set up a study dealing with Nicosan. The question in my last post has me thinking that there are some unanswered questions. The think most of the skepticism does come from the fact that it’s an African herbal remedy versus a Westernized one. There isn’t enough documentation and evidenced
Nicosan Research Study Read More »
Hey everyone, If you have gotten your Nicosan shipment and would like to take part in a study regarding that documents the benefits of Nicosan please email me. I’m also interested in Hydroxyurea users or people that use other drugs and alternatives. I’m trying to conduct a pain survey that observes the different non-traditional treatment
Announcements, Announcements, Announcements! Read More »
Hey, I just got my grades for this last semester. I rocked out y’all! My GPA is 3.9 and I’m still banging out straight A’s. Oh yeah, oh yeah *jumping up and down* Anyway, in the spirit of giving, sharing and all that Jazz, I’m going to host the sickle cell presentation I created for
Oh my goodness, i just was sent a link to the most interactive sickle cell forum on the web! It was started by an obviously tech savvy and funny fam. You can upload blogs, pix, links, videos and just pretty much everything else like you could on Myspace/Facebook and other social networking sites—but it’s all
I got asked this question by one of my more inquisitive readers and I had to go searching for an answer! This is directly quoted from an article on Dr NDTV.com written by Dr. Kumar. Nicosan is a phytochemical agent i.e. a chemical or nutrient derived from a plant source that is not required for
How Does Nicosan Work?? Read More »
