What is this? The American Society of Gene & Cell Therapy (ASGCT) is proud to announce the first release of the Society’s Patient Education program, a new initiative for 2019. The new patient-centered portal is designed by ASGCT committee volunteers in coordination with patient advocacy groups to educate and inform patients, families, and the general […]
ASGCT Patient Education on Blood Disorders Read More »
Dear Sickle Cell Community, Join a 5-week webinar series on the topic “Blood Transfusions: What You Need to Know and Do”. The interactive series will include in-depth information on blood matching, iron overload, blood donations, and patient-provider communication techniques/skills. Register here for the educational series: https://ghpc.wufoo.com/forms/the-warrior-university-online-series/ *Registry and Education for Hemoglobinopathies and Hemovigilance/Transfusion Therapy in Georgia
Warrior University Online Series Read More »
Holistic Health and Sickle Cell Disease: A focus on Mental and Behavioral Health Thursday, February 28, 2019 1:00 – 2:15 pm EST Register Here Sickle cell disease (SCD) affects millions globally, disproportionately impacting certain racial and ethnic minority populations, including African Americans, Latinos and people of Middle Eastern, Indian, Asian and Mediterranean descent. According to
Holistic Health and Sickle Cell Disease Webinar Read More »
VOICE Crisis Alert App First national app created for patients and families with sickle cell disease The app stores all its data locally on your phone, so it’s private. In addition to being a crisis pain tracker tool storable for 90 days with an in-app pain diary to share with your health care provider and
VOICE Crisis Alert App for SC Read More »
Tosin gives us a preview of 2014 for Sickle Cell Warriors and some announcements on the website.
