Nicosan–The Orphan Drug
Nicosan–The Orphan Drug Read More »
Living with Sickle Cell
Nicosan Trial: Week One
Okay, several people have voiced concerns over me getting a crises a few days after I started taking Nicosan. I truly don’t believe that it was related or that Nicosan triggered my crises. I think that I was rundown, sick, dealing with the stress of the trip, traveling, the new job and strep throat. All
Nicosan Trial: Week One Read More »
Connecting With Someone With Sickle Cell
I just got off the phone with Milan, a reader from the blog who is the absolutely most fabulous chick I’ve had the pleasure of meeting with sickle cell. She’s like a young version of me, all spunk, feisty, full of determination, attitude, sass and heart. She’s actually what I wish I was when I
Connecting With Someone With Sickle Cell Read More »
What the Pain Feels Like
This is one of my absolute favorite PSA’s about sickle cell. Elise is totally kick ass, a warrior of the highest grade and I adore her accent. Her she talks about the pain that we sickle cell warriors go through. If you want to watch the whole series, click HERE or visit http://www.curesicklecelldisease.com/
What the Pain Feels Like Read More »
Crises #2: What Happened
Dates: May 9-17. After spending Thursday night fighting cold and flu symptoms, Friday morning had me dealing with pain…in a major way. None of the trifecta of painkillers, (Oxycodone, Vicodin and Dilaudid) could help me, even when I majorly dosed up on the trifecta. This means that the pain was so out of control that
Crises #2: What Happened Read More »
Crises #2 of 2008: The Triggers
First of all, let’s focus on the triggers: The Trip to Hawaii: I was sick on this trip but not a major crises zone. More like “I’m warding off a major crises with rest and meds, please God don’t let me get majorly sick!” I did get better towards the end of the trip though.
Crises #2 of 2008: The Triggers Read More »
Back Again
Well, the last week has been rough to say the least. I’m going to explore the triggers of my last crises as I usually do in my next post, but this one was really, really awful. The last time I was sick, I thought it was my worst time ever…but this time, this puts everything
Back from Hawaii
Wow that was such a nice vacation. I’m going to post pics soon on both Myspace and Facebook, but once I got over the ‘sickle cell’ thing it was so fun. This didn’t happen until Thursday, day 5 of 7…grrr! That was my first day that I didn’t take any painkillers whatsover. We were in
Mahalo!
The flight to Hawaii was really long, about 8 hours in total. I was worried that my sickle cell would flare up but it held up. The main thing is that I can’t go into the water as much as I would like to because my core body temperature drops when I’m immersed in water.