I’m not a warrior, but I’m a warrior wife. So I’ve spent time on the other side of your story. My story feels like it may have come from a Nigerian movie. I have known my husband for 21 years, we grew up as friends and neighbors. Everything was fine until he decided to […]
Mary: The Story of a Warrrior Wife Read More »
Reserve Your Hotel Room Today for SCD Seminar! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means , for $25 the SCD Warrior gets: A bus ride to Sacramento from one of 5 routes to the SCD Seminar To stay four nights at one
SCD Seminar & Hotel Registration 2018 Read More »
S S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act. Then
GBT Announces Positive Top-line Data from Part A of the Phase 3 HOPE Study of Voxelotor in Sickle Cell Disease Primary Endpoint Achieved; 58 Percent of Patients on Voxelotor Dosed with 1500 mg at Week 12 Exceeded 1 g/dL Increase in Hemoglobin Versus 9 Percent of Placebo (p<0.0001) Company Met with FDA on June 25
GBT’s Phase 3 HOPE study Results Read More »
Annual Sickle Cell Disease Patient & Family Educational Symposium The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community. Now in its fifth year, the meeting has grown in size and scope. Each year the meeting
Sickle Cell Patient & Family Educational Symposium Read More »
Meet Aminat: Daughter, Student, Future Finance Mogul, Warrior I was 8 when I found out that I have sickle cell. I remembered that I stayed in the hospital for a very long time. My parents took care of me like an egg then because I was a child who understood very little. I am
Meet Aminat: Daughter, Student, Future Finance Mogul, Warrior Read More »
SCW INVITES YOU! The Patients, Caregivers and CBOs of the SC Community Consortium are pleased to invite you to attend the 5th Annual Sickle Cell Disease Patient & Family Educational Symposium from July 18-22, 2018 in Memphis, Tennessee! www.sicklecellconvention.com ABOUT THE SYMPOSIUM Most importantly, the SCD Patient & Family Educational Symposium (known throughout the SC community as the Warrior
5th Annual Sickle Cell Disease Patient & Family Educational Symposium Read More »
Meet Jacqee, Daughter, 3rd Grade Teacher’s Assistant, Beautiful, Warrior How old where you when you found out you had sickle cell? I was diagnosed with Sickle Cell (type: SC) when I was around 3 months old. I came to my own personal understanding of being diagnosed with sickle cell around the age of 5. How
Meet Jacqee, Daughter, 3rd Grade Teacher’s Assistant, Beautiful, Warrior Read More »
Genetic Testing for Families Affected by Genetic Recessive Disorders DNACheckup is a fairly new non-profit organization. It is geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic disorders. First, patients can order the tests online. Tests ship directly to the person who orders them. We work with the lab
Genetic Testing for Families Read More »
10th Annual SCD Educational Meeting The 10th Annual SCD Educational Meeting is a forum to discuss combining types of medicine. In addition, discussions include future trends for treating patients with sickle cell disease and trait. So, attendees will hear information from new research and medication. Learn how to get your voice heard with government and
10th Annual SCD Educational Seminar: Integrative Medicine and Sickle Cell Disease Read More »
