Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be featuring real stories from sickle […]
Rainy Lake Medical Center, International Falls, MN – Negative Review Read More »
Sickle Cell Disease Handbook for Patients & Families At this time, the Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. For one thing, The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook allows parents to review it with their
Sickle Cell Disease Handbook by APHON Read More »
Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference. It will take place in New York City on September 14. You can view it with SCW at https://www.facebook.com/SickleCellWarriors/. This conference is the first to be entirely live streamed on our Facebook page. Through the
Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017 Read More »
Hello everyone! Sickle Cell Warriors, we hear complaints that there is not enough being done for Sickle Cell Disease. Only a few people completed this survey which is disappointing. For instance, there are over 100,000 people with SCD in the US and millions abroad and very few people have filled it out. How can we
You Can Make a Difference! Read More »
RN Tosin Ola Answers Your Sickle Cell Questions Interview with Tom Joyner In this interview with Tom Joyner, check out our Founder, Tosin Ola’s interview on his radio show. Repping for Sickle Cell all the time. In addition, consider telling others. Awareness is integral and we all must do our part. Love your support Warrior
Interview with Tom Joyner: Get Well Wednesday Read More »
This excellent action network resource dedicates itself to sickle cell disease. For the last few months, Gary Gibson, President of the Martin Center Sickle Cell Initiative hosted this amazing show. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community, hear more about management of SCD,
Action Network at 1pm PST Tuesdays Read More »
One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015. She talks about how it is to live with sickle cell disease, then what the pain feels like, going through a VOC, and the stigma that we often face living with an invisible illness. Above
Heather on Dr. Phil Show Read More »
Hello Warrior Family this is our bi-annual update! This bi-annual update letter is a year late but I finally finished it. Apologies for the delay. Read on and you will see why… It’s been a while since I last penned an article on here. Thank you so much to everyone that has emailed, texted, called,
Bi-Annual Update of Sickle Cell Warriors™ Read More »
Hello everyone – here are some World Sickle Cell Day Activities! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization (WHO) and is celebrated all over the world. A few years ago, most of us didn’t know when it was, and
World Sickle Cell Day Activities! Read More »
