Advocacy and Activism Archives - Page 6 of 10

Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017

Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference. It will take place in New York City on September 14. You can view it with SCW at https://www.facebook.com/SickleCellWarriors/. This conference is the first to be entirely live streamed on our Facebook page. Through the […]

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Stop Mistreatment of Sickle Cell Patients in the Emergency Room

3 Comments / Advocacy and Activism, Living with Sickle Cell, Parenting, SC News and Research, Tosin’s Corner / SC Warrior

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You Can Make a Difference!

2 Comments / Advocacy and Activism / SC Warrior

Hello everyone! Sickle Cell Warriors, we hear complaints that there is not enough being done for Sickle Cell Disease. Only a few people completed this survey which is disappointing. For instance, there are over 100,000 people with SCD in the US and millions abroad and very few people have filled it out. How can we

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Interview with Tom Joyner: Get Well Wednesday

Advocacy and Activism, Living with Sickle Cell, Newest Features / SC Warrior

RN Tosin Ola Answers Your Sickle Cell Questions Interview with Tom Joyner In this interview with Tom Joyner, check out our Founder, Tosin Ola’s interview on his radio show. Repping for Sickle Cell all the time. In addition, consider telling others. Awareness is integral and we all must do our part. Love your support Warrior

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Action Network at 1pm PST Tuesdays

Advocacy and Activism, Living with Sickle Cell, Newest Features, Tosin’s Corner / SC Warrior

This excellent action network resource dedicates itself to sickle cell disease. For the last few months, Gary Gibson, President of the Martin Center Sickle Cell Initiative hosted this amazing show. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community, hear more about management of SCD,

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Heather on Dr. Phil Show

Advocacy and Activism, Videos, Warriors in the Spotlight / SC Warrior

One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015. She talks about how it is to live with sickle cell disease, then what the pain feels like, going through a VOC, and the stigma that we often face living with an invisible illness. Above

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Bi-Annual Update of Sickle Cell Warriors™

1 Comment / Advocacy and Activism, Newest Features, Tosin’s Corner / SC Warrior

Hello Warrior Family this is our bi-annual update! This bi-annual update letter is a year late but I finally finished it. Apologies for the delay. Read on and you will see why… It’s been a while since I last penned an article on here. Thank you so much to everyone that has emailed, texted, called,

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World Sickle Cell Day Activities!

1 Comment / Advocacy and Activism, Newest Features / SC Warrior

Hello everyone – here are some World Sickle Cell Day Activities! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization (WHO) and is celebrated all over the world. A few years ago, most of us didn’t know when it was, and

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Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Advocacy and Activism / SC Warrior

Sickle Cell Warriors, check out this pediatric voucher!!! We need your help! Please read the letter below and send your comment into the FDA. We have until February 16th to respond as a community. The deadline is coming up quick! The Pediatric Rare Disease Voucher Program was created for sickle cell disease, however, due to

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SC Gathering & Educational Symposium Appreciation

3 Comments / Advocacy and Activism, Newest Features, Tosin’s Corner / SC Warrior

WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone who has attended and made this experience phenomenal. Lakiea & I hope that you found it extremely informative, educational, inspiring, and supportive. There are so many people to thank, so we are just going to

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