SC Warrior

Road Trip!!!

So I just did a cross country road trip down 101. Whoever said people with sickle cell could not drive long distances obviously has never met me. I drove 997 miles from Portland, OR to Santa Barbara, CA…all by my wonderful, fabulous self! Much to the consternation of my parents, who wanted me to take

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SickleSpace

Oh my goodness, i just was sent a link to the most interactive sickle cell forum on the web! It was started by an obviously tech savvy and funny fam. You can upload blogs, pix, links, videos and just pretty much everything else like you could on Myspace/Facebook and other social networking sites—but it’s all

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New Adult SCD Study

The Adult Sickle Cell Quality of Life Measurement Information System(ASCQ-Me) Project is creating a tool to help doctors and researchersacross the U.S. better understand what it’s like for adults livingwith sickle cell disease. By understanding how sickle cell affects a person’s daily life –like how it affects sleeping, eating, being able to move around,emotions and

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Nicosan News

Okay, sorry I haven’t been posting in a while…real life has me in knots. But…I’m very heartened by all the wonderful emails I’ve been getting from everyone who has gotten their Nicosan and has started using it. I love hearing whatever feedback you have…and I’m sure that this will serve as an inspiration to others.

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Xechem Filed Bankruptcy

To everyone that sent me emails about Xechem going bankrupt…thanks–I got the memo! Xechem is the company that produces Nicosan in Nigeria and they filed for bankruptcy last week. http://investorshub.advfn.com/boards/read_msg.aspx?message_id=33732325 However, multiple sources tell me that they haven’t stopped production of Nicosan yet and have no plans to do so. In addition, they still have

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Stand Up!

Awwww, I got an email from another reader who just ordered his Nicosan 2 weeks ago. I must say, I have the most supportive and wonderful readers on this blog. I received my order today. Thanks for putting your neck out there for us.God bless.A.M. So…have you got your Nicosan yet? November marks my 6

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