Sickle Cell Award
Award from AccessDNA on raising awareness for sickle cell
Commentary on recent news of a mini transplant as a viable reversal option for SCD patients.
‘Mini’ Transplant May Reverse Severe Sickle Cell Disease Read More »
To all my sickle cell warriors in other countries, my heart goes out to you. I know that we mostly talk about the care in the US, and I know that at times, the care in other places can be even more difficult than what we have over here. Wherever you are, whatever your struggle,
Sickle Cell Patient Dies in Bahrain:( Read More »
New sickle cell treatment clinic opens in Chicago
SC Treatment Clinic Opens in Chicago Read More »
video on some of the most common intravenous accesses sickle cell patients have
Video:Ports, Catheters & IVs Read More »
Tosin explains why the word ‘sickler’ is an anathema to her. Words have power. Do not allow a word to limit your dreams, aspirations and potential.
Do Not Call me a Sickler!!! Read More »
I was wondering if anyone else has pain right before their period starts or during. I never was a woman to get cramps or migraines but i do get pains in my left knee right before my period starts. Lately I’ve been also feeling drowsy and drained. I have said on here several times that
Sickle Cell & Your Period Read More »
Many sickle cell warriors have insomnia. I haven’t been able to figure out the biophysical reasons around this, but I’m actively searching. The only hypothesis I have is that insomnia is somehow due to the pain meds we take. Perhaps our bodies become attuned to drowsiness only with opiates and as a result we can’t
Sickle Cell and Insomnia Read More »
Medical researchers are developing a new surveillance system to determine the number of patients diagnosed with a family of inherited blood disorders known as hemoglobinopathies, including sickle cell disease, thalassemias, and hemoglobin E disease. The National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health is funding the four-year pilot project, which