I was wondering if anyone else has pain right before their period starts or during. I never was a woman to get cramps or migraines but i do get pains in my left knee right before my period starts. Lately I’ve been also feeling drowsy and drained. I have said on here several times that
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Many sickle cell warriors have insomnia. I haven’t been able to figure out the biophysical reasons around this, but I’m actively searching. The only hypothesis I have is that insomnia is somehow due to the pain meds we take. Perhaps our bodies become attuned to drowsiness only with opiates and as a result we can’t
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Medical researchers are developing a new surveillance system to determine the number of patients diagnosed with a family of inherited blood disorders known as hemoglobinopathies, including sickle cell disease, thalassemias, and hemoglobin E disease. The National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health is funding the four-year pilot project, which
Here are some tips on how to have successful encounters in the bedroom…and prevent a crises.
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This week, I got a chance to speak with Phyllis Thomas, the founder of the SCD Soldiers Network which is an Advocacy Group for Adults with Sickle Cell Disease (AGASCA). The SCD Soldier Network enables the sickle cell community to be advocates for each other. The beautiful part of this organization is that it’s driven
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So I know that I haven’t blogged in a couple of weeks, but readers on the FB page will know that I ran out of Nicosan and fell sick! I’m much better now, and things seem to be looking up on the Nicosan front. I have also been job hunting. Actually I applied for and
Hello everyone, As I’m writing this, I’m having my first pain crises in over a year. I ran out of Nicosan last week, and I got slammed with pain today. So. Not. Fun. I’d almost forgotten how all encompassing a sickle cell crises is. I was relishing my new lease on life only to get
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Hello fabulous warriors! Okay, everyone here has gotten something from the sickle cell online community in one way or another. Now here is your chance to participate and help others with knowledge the same way you have been helped. Remember, we are the only ones that can change the way the world views sickle cell
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