The American Society of Pediatric Hematology/Oncology’s 2019 Annual Conference will feature a session on sickle cell disease (SCD), Friday, May 3, from 4:45 pm – 6:15 pm. The session, titled “Putting an End to End Organ Damage in Sickle Cell Disease,” will be moderated by Dr. Courtney D. Thornburg. Though the survival for pediatric patients with […]
ASPHO Conference – Session on Sickle Cell Disease Read More »
The Centers for Disease Control and Prevention (CDC) released clarification on prescribing opioids to manage pain for certain conditions. The clarification, regarding CDC’s Guideline for Prescribing Opioids for Chronic Pain– issued in a letter from the agency to the American Society of Clinical Oncology (ASCO), the American Society of Hematology (ASH), and the National Comprehensive Cancer
CDC Issues Key Clarification on Guideline for Prescribing Opiods for Chronic Pain Read More »
The American Society of Hematology (ASH) is seeking public comments on two draft clinical practice guidelines: sickle cell disease (SCD)-related pain, and SCD-related transplantation. The deadline for comments is May 13, 2019 and related materials can be found on the ASH Website. In 2018, the first three of ASH’s series of five SCD guidelines opened for public
ASH is Seeking Feedback on Two New SCD Guidelines on Pain and Transplantation Read More »
The American Society of Hematology (ASH) is seeking comments on two additional draft clinical practice guidelines on sickle cell disease (SCD): pain and transplantation. All members of the public are invited to review the draft recommendations and submit comments, including physicians and researchers, allied professionals, industry and insurance company representatives, patients, caregivers, and general members
Comments on Practice Guidelines for SCD Read More »
Exciting news!! Akshat Jain, MD, Director of Pediatric Hematology-Oncology at Loma Linda University Children’s Hospital and his team cures a Sickle Cell Disease patient through their first stem cell transplant. On behalf of Sickle Cell Warriors, a huge congratulations to Dr. Jain and his entire team! Click here to read the entire article.
SCD Cure through Stem Cell Transplant Read More »
This patient and caregiver survey seeks to understand the experience sickle cell patients have had with their disease as well as their interaction with the healthcare system. By learning more about your journey or that of your child, we hope to help inform how companies can develop novel products that would better serve sickle cell
Sickle Cell Phone Survey Opportunity for Patients and Caregivers! Read More »
SCDC Sickle Cell Data Collection program Register for Webinar “What’s New at SCDAA” Wednesday, April 24, 2019 10:00 AM – 11:30 PM PST Register now: https://attendee.gotowebinar.com/register/1778776015181580301 Presented by Ms. Beverley Francis-Gibson, SCDAA President and CEO, and Dr. Biree Andemariam, SCDAA Chief Medical Officer. Tracking California’s Sickle Cell Data Collection for California program invites you to attend a webinar, “What’s New at the
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Global Genes has formed a running team for the OC Marathon to raise money and awareness for rare disease community activities. Warriors – join the team to run, help volunteer, or come and cheer on the team as they run. Either way we would love to have you involved! For more information check out the
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ASH Research Collaborative Hosts SCD Community Engagement Workshops Join the ASH Research Collaborative for a series of fun and engaging Sickle Cell Disease Community Engagement Workshops this spring and summer, throughout the country for individuals living with sickle cell disease and their parents/guardians. The first workshop takes place April 13, 2019 in Chicago, IL! If
SCD Clinical Trials Network Workshops Read More »
