This excellent action network resource dedicates itself to sickle cell disease. For the last few months, Gary Gibson, President of the Martin Center Sickle Cell Initiative hosted this amazing show. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community, hear more about management of SCD, and learn from the leading researchers, physicians, advocates, and health care professionals about everything you need to know to live sickle strong. As well as listen with your friends, family, and even children.
In addition, today’s episode (12/29) focuses on advocacy, and the President & Founder of SCW, our very own Tosin Ola will be on the show. Older episodes and other great educational programs on by the Martin Center on SCD are posted HERE on Youtube.
Details below.
Most importantly, follow the directions ahead of time because the show starts promptly. Listen from your tablet, phone, or computer. Be a part of the action network!
Tosin Ola
During a long hospitalization in 2005, Tosin Ola went on a search for a sickle cell blog. This is something that could connect her to others like her. A practicing nurse then, she couldn’t find what she needed, so she started her own, and it became so wildly popular that two years later, Ola launched the Sickle Cell Warriors website, a portal of information for sickle cell patients, families, and health professionals. She also started a Facebook page—now with nearly 21,000 members—all while working on a dual degree in nursing and business administration and raising two boys. Her activism around building community has garnered Ola national attention and endless kudos.