Sickle Cell Warriors

Tag "Parents and Caregivers"

    Sickle Cell and Endari

Sickle Cell and Endari

**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine specially formulated for sickle cell disease. When taken

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    Can Sickle Cell Patients Get Malaria? Yes, You Can!

Can Sickle Cell Patients Get Malaria? Yes, You Can!

Can a sickle cell warrior get malaria? There is a myth pervasive in the medical and sickle cell community that for some unknown reason sickle cell gives you immunity to malaria. This is NOT true! One of the worst childhood crisis I had was when I turned 12. It was

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    Sickle Cell and the Key to Happiness

Sickle Cell and the Key to Happiness

The Key to Happiness November 11, 2017  Written by: crystalmccrory32 My son has a form of sickle cell anemia that has caused him great pain and suffering throughout his life. It often impedes his physical abilities, sidelining him for important events and milestones other children seamlessly enjoy.  This past year

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    Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook for Patients & Families The Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook is written at the 6th grade level allowing parents to

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    Tips to Prevent Sickle Cell Crisis in the Summer

Tips to Prevent Sickle Cell Crisis in the Summer

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    Life Insurance with Sickle Cell

Life Insurance with Sickle Cell

It’s been very hard to obtain life insurance with sickle cell disease. Here are a few tips that may get your application approved.

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    Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain is not real. We are not just looking for Dugs. Why wood anyone get out their bed and go to hospital at 3am, if their pain
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Who’s Really On Your Team?

This week was a sad week for my family because after twenty years, I have decided to transfer to another hospital for the medical care for my 8 year old Sickle Cell warrior.  Knowing that everyone on your child’s medical team has your family’s best interest is one of the

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    Don’t Be Bullied!

Don’t Be Bullied!

As parents of warriors, we must always be alert when managing our babies’ Sickle Cell disease.  Recently, I had another eye-opening experience while dealing with doctors after my warrior temporarily lost her vision twice.  The doctors immediately admitted her and gave her a blood transfusion.  Next, they ran all kinds

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    So My Newborn Has Sickle Cell…What Now?

So My Newborn Has Sickle Cell…What Now?

Most people are excited to bring a bundle of joy into the world.  As a mom, you love them from the moment you feel that first burst of life moving in your belly.  But what happens when the doctors tell you that your baby may or may not have Sickle

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    Ode to the Caregiver

Ode to the Caregiver

To all the Warrior Moms, Dads, Lovers, Sisters, Brothers, Husbands, Wives, Children & Caregivers. This one is for you. Thank you for being our angels. YOU ARE BEAUTIFUL…………………………. You are Beautiful Have you seen the angel in your world. She is a beauty to behold! Her wings were brilliant but

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    Getting A Child With Sickle Cell Anemia To Eat Healthy

Getting A Child With Sickle Cell Anemia To Eat Healthy

As most parents know, many children can be picky eaters and getting them to eat their fruits and vegetables has challenged parents for many decades. Especially for those youngsters diagnosed with SCD (Sickle Cell Disease), it is often associated with low calcium intake, vitamin D deficiency and a poor appetite,

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    Has SC Hit Your Finances?

Has SC Hit Your Finances?

Sickle Cell has had a major negative effect in my finances for the last 6 years. Many people don’t pay attention to how this struggle is and how doing it as a single parent makes it almost impossible. Be straight with yourself and assess where your faith is right now

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Know Who You Are!

Know Who You Are! Greeting to All, it’s been a minute, my SC parents! My warrior has been continuously sick since my last article posting and hence my writing had slowed! But God has blessed me with my second wind and inspired me to write for all my SC parents

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    Sickle Cell Families Need Direct Support Services

Sickle Cell Families Need Direct Support Services

Being the parents of a Sickle Cell Warrior (SCW), we know giving up is never an option. Even when we don’t receive the needed support to get through each crisis, we can never lose hope or our smile. Your child survives merely through the pain from your strength/smile. But who

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From CT Sickle Cell Org---my favorite SCD PSA.

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Example SS, SC, Beta Thal, Monroe, etc.
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