Sickle Cell Warriors

Tag "Parents and Caregivers"

    Genetic Testing for Families

Genetic Testing for Families

Genetic Testing for Families Affected by Genetic Recessive Disorders DNAcheckup is a fairly new non-profit organization geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic disorders. Patients can order the tests online, which will be shipped to them directly. We work with the lab GeneByGene

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    Special Pricing on Books for World Sickle Cell Day

Special Pricing on Books for World Sickle Cell Day

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    SCD Adult Support Groups in Southern California

SCD Adult Support Groups in Southern California

California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with SCD and get valuable info about improving your health. You also gain an understanding how others cope with SCD, share

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    5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC   Conference Description Sickle Cell Disease is the most common inherited blood disorder. Due to improvements in childhood care, many more patients are living

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    Registration Open for Sickle Cell Patient & Family Convention 2018

Registration Open for Sickle Cell Patient & Family Convention 2018

Hello Warrior Family, Registration is now open for the 2018 Annual Sickle Cell Patient & Family Educational Symposium. To learn more visit www.sicklecellconvention.com. This is the same one that we have done for the past 3 years. It will be in Los Angeles, CA from July 28-31. Hope to see

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    Sickle Cell and Endari

Sickle Cell and Endari

**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine specially formulated for sickle cell disease. When taken

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    Can Sickle Cell Patients Get Malaria? Yes, You Can!

Can Sickle Cell Patients Get Malaria? Yes, You Can!

Can a sickle cell warrior get malaria? There is a myth pervasive in the medical and sickle cell community that for some unknown reason sickle cell gives you immunity to malaria. This is NOT true! One of the worst childhood crisis I had was when I turned 12. It was

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    Sickle Cell and the Key to Happiness

Sickle Cell and the Key to Happiness

The Key to Happiness November 11, 2017  Written by: crystalmccrory32 My son has a form of sickle cell anemia that has caused him great pain and suffering throughout his life. It often impedes his physical abilities, sidelining him for important events and milestones other children seamlessly enjoy.  This past year

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    Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook for Patients & Families The Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook is written at the 6th grade level allowing parents to

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    Tips to Prevent Sickle Cell Crisis in the Summer

Tips to Prevent Sickle Cell Crisis in the Summer

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    Life Insurance with Sickle Cell

Life Insurance with Sickle Cell

It’s been very hard to obtain life insurance with sickle cell disease. Here are a few tips that may get your application approved.

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    Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain is not real. We are not just looking for Dugs. Why wood anyone get out their bed and go to hospital at 3am, if their pain
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Who’s Really On Your Team?

This week was a sad week for my family because after twenty years, I have decided to transfer to another hospital for the medical care for my 8 year old Sickle Cell warrior.  Knowing that everyone on your child’s medical team has your family’s best interest is one of the

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    Don’t Be Bullied!

Don’t Be Bullied!

As parents of warriors, we must always be alert when managing our babies’ Sickle Cell disease.  Recently, I had another eye-opening experience while dealing with doctors after my warrior temporarily lost her vision twice.  The doctors immediately admitted her and gave her a blood transfusion.  Next, they ran all kinds

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    So My Newborn Has Sickle Cell…What Now?

So My Newborn Has Sickle Cell…What Now?

Most people are excited to bring a bundle of joy into the world.  As a mom, you love them from the moment you feel that first burst of life moving in your belly.  But what happens when the doctors tell you that your baby may or may not have Sickle

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From CT Sickle Cell Org---my favorite SCD PSA.

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