Sickle Cell Warriors

Tag "Parents and Caregivers"

Who’s Really On Your Team?

This week was a sad week for my family because after twenty years, I have decided to transfer to another hospital for the medical care for my 8 year old Sickle Cell warrior.  Knowing that everyone on your child’s medical team has your family’s best interest is one of the

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    Don’t Be Bullied!

Don’t Be Bullied!

As parents of warriors, we must always be alert when managing our babies’ Sickle Cell disease.  Recently, I had another eye-opening experience while dealing with doctors after my warrior temporarily lost her vision twice.  The doctors immediately admitted her and gave her a blood transfusion.  Next, they ran all kinds

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    So My Newborn Has Sickle Cell…What Now?

So My Newborn Has Sickle Cell…What Now?

Most people are excited to bring a bundle of joy into the world.  As a mom, you love them from the moment you feel that first burst of life moving in your belly.  But what happens when the doctors tell you that your baby may or may not have Sickle

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    Ode to the Caregiver

Ode to the Caregiver

To all the Warrior Moms, Dads, Lovers, Sisters, Brothers, Husbands, Wives, Children & Caregivers. This one is for you. Thank you for being our angels. YOU ARE BEAUTIFUL…………………………. You are Beautiful Have you seen the angel in your world. She is a beauty to behold! Her wings were brilliant but

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    Getting A Child With Sickle Cell Anemia To Eat Healthy

Getting A Child With Sickle Cell Anemia To Eat Healthy

As most parents know, many children can be picky eaters and getting them to eat their fruits and vegetables has challenged parents for many decades. Especially for those youngsters diagnosed with SCD (Sickle Cell Disease), it is often associated with low calcium intake, vitamin D deficiency and a poor appetite,

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    Has SC Hit Your Finances?

Has SC Hit Your Finances?

Sickle Cell has had a major negative effect in my finances for the last 6 years. Many people don’t pay attention to how this struggle is and how doing it as a single parent makes it almost impossible. Be straight with yourself and assess where your faith is right now

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Know Who You Are!

Know Who You Are! Greeting to All, it’s been a minute, my SC parents! My warrior has been continuously sick since my last article posting and hence my writing had slowed! But God has blessed me with my second wind and inspired me to write for all my SC parents

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    Sickle Cell Families Need Direct Support Services

Sickle Cell Families Need Direct Support Services

Being the parents of a Sickle Cell Warrior (SCW), we know giving up is never an option. Even when we don’t receive the needed support to get through each crisis, we can never lose hope or our smile. Your child survives merely through the pain from your strength/smile. But who

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    Warrior Parents: Know When It’s Time to Go!

Warrior Parents: Know When It’s Time to Go!

In today’s society, almost no one will understand you position in caring for your little warrior. When you feel your job title changes to “Problem Employee/Always Absent Employee” then it’s time to make a plan for you to exit stage left. God has placed in us all gifts and talents

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    Schools & Parents Can Work Together

Schools & Parents Can Work Together

ElleJanae explains how to work together with school administrators and the teacher to get your 504B plan instituted and executed for your child.

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    Don’t Persecute the Process

Don’t Persecute the Process

As a parent, what you say matters. ElleJanae shares a secret to keeping her well of faith full.

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    Keeping the Family Circle

Keeping the Family Circle

In this fast paced world, its easy to lose sight of quality family time. ElleJ shares with us how she is able to keep her family connected, close, and strong.

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    Everyone in the Family is Important–Not Just the Warrior

Everyone in the Family is Important–Not Just the Warrior

Here are some tips from one warrior mom to another on how to spread the love and attention around the whole entire family, especially to the children that do not have sickle cell.

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    Every Little Warrior Loves Chicken Nuggets

Every Little Warrior Loves Chicken Nuggets

How can you get your little one to eat more veggies? Here is a great recipe that might be beneficial.

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    Pack it Up!

Pack it Up!

The Boy Scout motto is Be Prepared. As a Sickle Cell Warrior or Caregiver, you too must always be prepared. Get ready for a crisis with your bags packed

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From CT Sickle Cell Org---my favorite SCD PSA.

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