Advocacy and Activism Archives - Page 5 of 10

5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC Conference Description Sickle Cell Disease is the most common inherited blood illness. Due to improvements in childhood care, many more patients are living into adulthood. There not enough…

Registration Open for Sickle Cell Patient & Family Convention 2018

Registration Hello Warrior Family, Registration is now open for the 2018 Annual Sickle Cell Patient & Family Educational Symposium. To learn more visit www.sicklecellconvention.com. In conclusion, this is the same one that we have done for the past 3 years. It will be in Los Angeles, CA from July 28-31. Above all, hope to see…

Rainy Lake Medical Center, International Falls, MN – Negative Review

Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be featuring real stories from sickle…

Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017

Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference. It will take place in New York City on September 14. You can view it with SCW at https://www.facebook.com/SickleCellWarriors/. This conference is the first to be entirely live streamed on our Facebook page. Through the…

Stop Mistreatment of Sickle Cell Patients in the Emergency Room

You Can Make a Difference!

Hello everyone! Sickle Cell Warriors, we hear complaints that there is not enough being done for Sickle Cell Disease. Only a few people completed this survey which is disappointing. For instance, there are over 100,000 people with SCD in the US and millions abroad and very few people have filled it out. How can we…

Interview with Tom Joyner: Get Well Wednesday

RN Tosin Ola Answers Your Sickle Cell Questions Interview with Tom Joyner In this interview with Tom Joyner, check out our Founder, Tosin Ola’s interview on his radio show. Repping for Sickle Cell all the time. In addition, consider telling others. Awareness is integral and we all must do our part. Love your support Warrior…

Action Network at 1pm PST Tuesdays

This excellent action network resource dedicates itself to sickle cell disease. For the last few months, Gary Gibson, President of the Martin Center Sickle Cell Initiative hosted this amazing show. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community, hear more about management of SCD,…

Heather on Dr. Phil Show

One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015. She talks about how it is to live with sickle cell disease, then what the pain feels like, going through a VOC, and the stigma that we often face living with an invisible illness. Above…

Bi-Annual Update of Sickle Cell Warriors™

Hello Warrior Family this is our bi-annual update! This bi-annual update letter is a year late but I finally finished it. Apologies for the delay. Read on and you will see why… It’s been a while since I last penned an article on here. Thank you so much to everyone that has emailed, texted, called,…