Question: G. Jones says, “What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain is not real. We are not just looking for Dugs. Why wood anyone get out their bed and go to hospital at 3am, if their pain wasn’t real. Methodist Hospital in Indianapolis Indiana is really bad with treatment of SC patents. If you say your hurting, why not believe you. If I say I think Im having a heart attack you wouldnt doubt it.”
Answer: G is right. We need to stop accepting being treated like crap in the Emergency Department is acceptable. Because it is not. I think every time something happens to us, we need to file a report. We need to let administration know. Most of these cases go under reported or people don’t follow through and so the hospital has no incentive to change anything. If we keep all the reporting to the hospital admins, governmental agencies, regulating bodies, licensure bodies, heck even Medicare. They would be forced to comply with providing quality consistent medical care to all sickle cell patients. We need to do it as a cohesive force. If 20,000 patients on here wrote into JCHACHO? Or into the Emergency Academy of Physicians? Change would be forced to happen. Staying silent and complacent is the problem.
We must be resistant..