Sickle Cell Warriors

Articles

 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

IN THE NEWS: September 2015 Edition

Harvard.edu, BellaNaijia.com, NewsMedical.net

IN THE NEWS: September 2015 Edition

Breaking news from all around the world in #sicklecell disease.

Stem Cell Transplant

Adult Successful stem cell transplant of 12 adults with sibling matches (half-match) at University of Illinois Hospital & Health Sciences, Chicago. 92% cure rate, 1 reversal (that patient did not follow protocol post-transplant). Great news! Read more

Wait Times in Emergency Department

Boston Medical Center has reduced wait times in the ED for ‪#‎sicklecell‬ patients from over an hour to 23 minutes. If they can do it…all ED’s should be able to do so and improve quality of care for SCD patients. Read more:

Boston Medical Center has significantly reduced the amount of time that pediatric patients experiencing pain from sickle cell disease (SCD) wait before receiving…
NEWS-MEDICAL.NET

Gene Editing/Gene Therapy Research

Scientists have found the modifier that triggers production of fetal hemoglobin in the DNA strand. One step closer to a universal cure…

Gene-editing study reveals pathway that could help short circuit sickle cell disease.
NEWS.HARVARD.EDU

International News

In Nigeria, Zahra Buhari (presiden’ts daughter) has signed on to be the brand ambassador of the Sickle Cell Aid Foundation (SCAF) based in Abuja, Nigeria. Her sister died from ‪#‎sicklecell‬. Great job using her platform for something positive.

Zahra Buhari is the Brand Ambassador to the Sickle Cell Aid Foundation (SCAF) | Photos 21.09.2015 at 7:46 am By BellaNaija.com Leave a Comment Zahra…
BY BELLANAIJA.COM
Tags
Share

About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

Related Articles

0 Comments

No Comments Yet!

There are no comments at the moment, do you want to add one?

Write a comment

Write a Comment

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Donate

Support awareness & education for SCD

WordPress › Error

Error! Donation amount must be a numeric value.