Near Death Experiences with Sickle Cell

I’m sure many sickle cell warriors can relate to having near death experiences. I’ve been deathly ill a quite a number of times, but out of those numerous admissions, only once can I quantify as being near death. The first was in 1993. I had Malaria, Cholera, and Pneumonia when I was 13 in Nigeria.…

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Message

So September is Sickle Cell Awareness Month…I’m sure many of you already know. I’ve been out of the SSA loop for a minute but so many of my readers are going through crises right now that it’s breaking my heart. I’m sending warm hugs via cyberspace to everyone that is dealing with a crises or…

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Juneteenth

Happy Juneteenth everyone! I’m up bright and early because Norio is in charge of organizing the music for the Juneteenth festivities here in Portland. On top of that, he’s also performing! It’s going to be a fun, interesting day… Hope it doesn’t rain!

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And the War Goes On…

Hello darlings, I’m back in action! Oh yeah baby!!!:) Seriously though, being sick totally sucks. I don’t want to have another crises for a loooooong, looooooooong time. I’m not even shooting for a year anymore, I just wanna be 100% crises free. So my visit to the ED totally sucked as usual. I really wish…

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363 days….

Where do I begin? I’m living in Santa Barbara, the site where the Jesusita fires were burning fiercely a mere 2 days ago. Thankfully the fires have now been contained. It started last Monday, and by Thursday, the fires were raging out the control, the city evacuated. Heads up, if you ever have sickle cell…

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April Fools Joke..not cool

Hello darlings, In the interest of full disclosure, I must state that I had pain this week. I actually had to call off of work on April 1st. The pains started as they normally did, twinges here and there, L1s, nothing major, and I ignored them, thinking it was a fluke and would just go…

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My Nicosan Story

Here is a question that I got from a reader on Nicosan that I would like to address: A friend of mine just started on Nicosan 12/12/08, due to lapse in medical coverage and not having monthly blood exchanges, he has been having severe pain every week, resulting in 2-3 ER visits/month since 9/08. Since…

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