Supporting Someone Through a Sickle Cell Crises

To the caregivers, family, friends and spouses of sickle cell warriors, many wonder how to cope and deal when their loved one is in pain. People deal with it differently: some shut down, some stare, some ignore you writhing in agony. Tosin Coker has created a wonderful video blog on a sickle cell warriors’ perspective…

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Sickle Cell & Your Period

I was wondering if anyone else has pain right before their period starts or during. I never was a woman to get cramps or migraines but i do get pains in my left knee right before my period starts. Lately I’ve been also feeling drowsy and drained. I have said on here several times that…

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Sickle Cell and Insomnia

Many sickle cell warriors have insomnia. I haven’t been able to figure out the biophysical reasons around this, but I’m actively searching. The only hypothesis I have is that insomnia is somehow due to the pain meds we take. Perhaps our bodies become attuned to drowsiness only with opiates and as a result we can’t…

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Sickle Cell & Depression

Question: How do you stay positive when you have sickle cell and its causing other significant health problems? It can be quite easy to slip into the doldrums and depression, especially when it feels like we are constantly beset with one physical ailment or another. I can’t claim to be just a ‘happy person‘ or…

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Coming Out of the Closet…

One of the users of the Sickle Cell forum posted this awesome testimonial about her sickle cell epiphany that I’m allowed to share with everyone. Since my epiphany occurred when I met another sickle cell warrior who was not ashamed about her disease, it’s so heartening when other people get the same attitude. Without further…

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