Is it possible to find love with sickle cell? Read Kena’s amazing story and then you be the judge.
Kena is an amazing, dynamic woman. I first met her on the SCW Facebook page, and she is such a supportive member of the community that we instantly clicked. During one of our many discussions, she mentioned the love of her life, and she was full of such radiant positivity and LOVE, that I just had to delve further into her relationships and love life. Kena has graciously allowed us to have a window into her radiant joy, and I know that you will be touched just like I was.
Okay, let us start at the very beginning. Tell us about your early relationships.
I’ve been blessed to never have a relationship end due to the Sickle Cell. I was with John about five years and because it was interracial, our differences and him being uncomfortable with them caused the break-up. He was never content with the race issue but truly loved me. I only met his daughter, but noone else in his family nor did we ever go out with any of his friends. Whenever we did go out, it was never anywhere he may run into someone he knew. Eventually that became to much for me and we parted as friends agreeing we could not build a life that way.
My last heartbreak was a very difficult one because we were engaged. I thought I had found forever and he was fantastic about the Sickle Cell. He was always there when I needed him. The reason we parted was he had a drinking problem that he hid from me. Once we were living together he could no longer keep up the ruse. I was completely devastated to the point that I no longer wanted a mate.
Fortunately, I have an amazing support system surrounding me. GOD, my family, friends, and church family were right there through it all. I then concentrated on my Christian walk searching for answers. Soon I realized he was not the person GOD intended for me and I was headed for an even greater heartache if I would have gotten married. I had never lived with a man because I didn’t believe in it. Living with him was a blessing in disguise which woke me up to the truth. [stextbox id=”alert” color=”000000″ bcolor=”000000″ bgcolor=”da8ad2″]I hoped that one day I would find the right man but had doubts because I was 42 and had Sickle Cell. I then resigned to the idea that I would probably spend the rest of my life alone.[/stextbox]
How did you handle the topic of sickle cell with guys that you dated? Did you wait, or tell them right away? What was the reaction, and what set this relationship apart from all the others?
We currently live in different states so the support is primarily emotional. He is very health conscious and has offered me plenty of suggestions on how to improve my quality of life and lifespan. I am implementing some of them such as eating healthier foods and exercising now. He is very supportive and shows that he cares daily. Always asking how I feel, if I took my medication, what/if I ate, and my general activity. I have a terrible sweet tooth and used to have regular junk food binges.
When I was visiting him for two weeks, I developed a bad pain in my stomach. He woke and could tell immediately something was wrong despite my efforts to hide it from him. “What’s wrong,” he asked? I told him I was hurting. He reached his hand toward me asked me to come here. I got back in the bed and laid beside him. I told him I was having severe stomach pain while trying to hold back the tears. He took me in his arms, held me close, and asked what he could do. I asked him to lay on my stomach because the pressure relieved the pain some. He did as he held me tight, wiped my tears, and told me everything would be okay. He didn’t leave my side until the medicine finally began to work and I drifted off to sleep. He should have been sleeping himself because he works nights and had not rested long enough but he was more concerned about me. He waited on me when I woke and did not want me to do anything until I felt I was able to without making it worse. I felt so loved and well taken care of by him. He is genuinely a caring person.
[stextbox id=”alert” color=”000000″ bcolor=”000000″ bgcolor=”d387cc”]Be honest! Having Sickle Cell is nothing to be ashamed of. It is easier to tell the person upfront then wait and risk heartache. If you decide to move forward in the relationship educate your partner and let them see you vulnerable. Talk about what you want in the future. Be realistic in your goals. Only you truly know your body and capabilities. If you decide to have children, please ask your partner to get tested so you can make an informed decision together. If you’ve been hurt before, don’t be afraid to open your heart again. Listen to your instincts and enjoy yourself. The man I love came into my life for the first time 32 years ago. We reconnected through Facebook and are now madly in love despite the illness or distance. Love can be waiting anywhere at anytime but usually happens when you least expect it. [/stextbox]
Thank you Kena for sharing your story and experiences with us all. I am sure that many can relate, and many have learned from it. Plus, there are a few ladies secretly crushing on your sweetheart! Congratulations for finding love with sickle cell and not allowing SC to stop you from living and loving. Give my regards to your Sweetheart.