One of my readers who has been on Nicosan for about a year now, has written this wonderful review that I would like to share with everyone. If anyone else has a Nicosan story that they would love to share; good, bad or indifferent; please send it my way. Also, if you would like to […]
Nicosan Testimonial Read More »
SICKLE CELL DISEASE AWARENESS STAMP In 2004 the Sickle Cell Disease Awareness Stamp was created as a part of the U.S. Postal Service’s stamp program that celebrates the people, events and history of our nation. It also served as another way for the U.S. Postal Service to continue its tradition of raising public awareness of
Sickle Cell Disease Stamp —Do Your Part! Read More »
Hey guys, MTV’s True Life is doing a story on ” I have a life altering ailment or illness.” If you are interested getting our story out there then you need to send an e-mail to seriousillness@mtvn.com. You should include your name, location, phone…etc. Let’s make sickle cell known to the folks at MTV~!
True Life —I Have Sickle Cell Read More »
This article was shared at the NING sickle cell forum. The content itself wasn’t bad, it just stated that the NCAA was considering mandatory screening of all players to prevent those that have sickle cell trait from adverse health outcomes. The premise of it sounds pretty good, screen all players to protect the ones with
Sickle Cell Test Plan by the NCAA Read More »
So September is Sickle Cell Awareness Month…I’m sure many of you already know. I’ve been out of the SSA loop for a minute but so many of my readers are going through crises right now that it’s breaking my heart. I’m sending warm hugs via cyberspace to everyone that is dealing with a crises or
NIH stops trial of drug for sickle cell patients July 28, 2009 | 10:46 am The National Institutes of Health has halted a clinical trial using sildenafil to treat pulmonary hypertension in sickle cell patients after preliminary results showed that the drug was actually increasing sickle crises rather than reducing them. Sildenafil, sold by Pfizer
PPH Sickle Cell Drug Trial Stopped Read More »
A friend on the Ning Sickle Cell forum is working with doctors at Johns Hopkins to develop training for medical students on sickle cell treatment & care. They want to know what issues we’re having with health care treatment. This is our chance to get on the soapbox and let our voices be heard. So
Nicosan is referenced on the Mayo Clinic website. We’re moving on up! Check it on the end here
Mayo Clinic on Nicosan Read More »
A new study shows that the annual cost of medical care in the US forpeople who suffer from sickle cell disease exceeds $1.1 billion. Check out the full article HERE. They report that the average total cost of care per month per patient was $1,946, with substantial variation across age groups. Total costs per patient-month
Sickle Cell costs $$$ Read More »
The United Nations and the World Health Organization has declared June 19th World Sickle Cell Awareness Day!! We have our own day y’all. Congratulations! Right now there is a huge festival in New York (I will be posting info in case you can make it), Cayman Islands, the ATL and all over the world. Please
Global Sickle Cell Awareness Day Read More »
