Meet Elise
Meet Elise: a beautiful, eloquent SCD warrior bravely sharing her story of the struggles of dealing with sickle cell.
Parenting
Should a Sickle Cell Trait Carrier Marry Someone with Sickle Cell Disease?
Should someone with AS marry someone with SS? This is a hot debate. Where do you stand?
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Sickle Cell & Depression
Question: How do you stay positive when you have sickle cell and its causing other significant health problems? It can be quite easy to slip into the doldrums and depression, especially when it feels like we are constantly beset with one physical ailment or another. I can’t claim to be just a ‘happy person‘ or
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Placing the Blame
Do children blame their parents for giving them sickle cell? For a first person tale, read on.
Sickle Cell & Pity
Here is a great question at the Sickle Cell Ning Forum. Why is that when you go into a crisis people tend to give you weird looks and have pity for you? We don’t need pity but support… I think people offer pity what they do not understand something. Like when a loved one dies,
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Sickle Cell vs the Flu and Cold
Hey everyone, thanks to all the people who have joined the SCW fan page on Facebook. It’s another great way to connect. Here is a great article on the difference between a regular cold and the flu. Since it’s Flu Season, and sickle cell warriors are more susceptible to developing greater complications because of a
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What the Pain Feels Like
This is one of my absolute favorite PSA’s about sickle cell. Elise is totally kick ass, a warrior of the highest grade and I adore her accent. Her she talks about the pain that we sickle cell warriors go through. If you want to watch the whole series, click HERE or visit http://www.curesicklecelldisease.com/
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Childhood: From Diagnosis to 10
When I was four, I was diagnosed with sickle cell anemia. It was in Nigeria, way back in the 80’s, and my mom was told by the doctors that I wouldn’t live past childhood. I’m the firstborn child, long awaited for five years and deeply celebrated by my family for coming into this world. There
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