The Adult Sickle Cell Quality of Life Measurement Information System(ASCQ-Me) Project is creating a tool to help doctors and researchersacross the U.S. better understand what it’s like for adults livingwith sickle cell disease. By understanding how sickle cell affects a person’s daily life –like how it affects sleeping, eating, being able to move around,emotions and […]
New Adult SCD Study Read More »
A couple of people have written asking me about the proper sickle cell diet. The best collection of sickle cell diet principles, menus and recipes that I’ve come across is in: Back to Our Roots Food For the Gods, “Cooking for the control of sickle cell anemia and disease prevention” by Chef Dawud R. Ujamaa
Okay, sorry I haven’t been posting in a while…real life has me in knots. But…I’m very heartened by all the wonderful emails I’ve been getting from everyone who has gotten their Nicosan and has started using it. I love hearing whatever feedback you have…and I’m sure that this will serve as an inspiration to others.
To everyone that sent me emails about Xechem going bankrupt…thanks–I got the memo! Xechem is the company that produces Nicosan in Nigeria and they filed for bankruptcy last week. http://investorshub.advfn.com/boards/read_msg.aspx?message_id=33732325 However, multiple sources tell me that they haven’t stopped production of Nicosan yet and have no plans to do so. In addition, they still have
Xechem Filed Bankruptcy Read More »
Okay, this week I got a whole bunch of emails from readers that ordered in Week One and Week Two….more and more people are getting their orders! Yippeee! Please note that you won’t start feeling curative effects for 15 days after you start taking it..but in 30-45 days, you will see a dramatic reduction in
Did you Take Your Nicosan? Read More »
Awwww, I got an email from another reader who just ordered his Nicosan 2 weeks ago. I must say, I have the most supportive and wonderful readers on this blog. I received my order today. Thanks for putting your neck out there for us.God bless.A.M. So…have you got your Nicosan yet? November marks my 6
Good news everyone! Whoever ordered their Nicosan in the first week should be expecting a pretty little box in the next couple of days. This is an email from one my readers that got their box yesterday. This is to let you know that I received my shipment of Nicosan today. I will start taking
Check your Mailboxes… Read More »
For those of you unable to get Nicosan or unwilling to join in the wonders of Nicosan, one of my readers, Charles, was kind enough to put together a list of other remedies that have been shown to alleviate sickle cell crises and pain. (Not cure—but alleviate!) I haven’t tried all of these out myself,
Hey everyone, Wow, thanks for the huge response. So far, I have almost 50 signatures (46 to be exact)…I didn’t even know that many people read this blog! I recently got a response from a reader in Nigeria that shows that we did make an impact! I guess your open letter to Xechem/Nicosan is being
Hey everyone, Due to the constant requests for changes with distribution of Nicosan, I’m putting up a letter that I plan to send to the Xechem board. If you would like to support the contents in this letter, please either email me your name or sign below. The more people we have, the bigger the
Open Letter to Xechem/Nicosan Read More »
