One of the users of the Sickle Cell forum posted this awesome testimonial about her sickle cell epiphany that I’m allowed to share with everyone. Since my epiphany occurred when I met another sickle cell warrior who was not ashamed about her disease, it’s so heartening when other people get the same attitude. Without further
Coming Out of the Closet… Read More »
Here is a great question at the Sickle Cell Ning Forum. Why is that when you go into a crisis people tend to give you weird looks and have pity for you? We don’t need pity but support… I think people offer pity what they do not understand something. Like when a loved one dies,
Sickle Cell & Pity Read More »
Hey everyone, thanks to all the people who have joined the SCW fan page on Facebook. It’s another great way to connect. Here is a great article on the difference between a regular cold and the flu. Since it’s Flu Season, and sickle cell warriors are more susceptible to developing greater complications because of a
Sickle Cell vs the Flu and Cold Read More »
Addendum: Anyone interested in sharing their story can followup on this. Shooting will be done in LA, and you will be flown in for the feature interview. Hope this helps! If interested, send an email to docprjtquery@demarfilms.net We are producing a feature length documentary on Sickle Cell Disease and those who live with it. Currently
More Info on the Sickle Cell Documentary Read More »
Okay, so ever since I wrote the Nicosan Woes post, I’ve gotten several people wanting to know what’s the new scoop on Xechem. I’ve kept my ears to the ground, and after emailing a few great Nicosan friends and supporters, have found out that things seem to be looking better and brighter for Nicosan. I
I came across this and thought someone might be interested. I’ve already sent in a request for more information (gotta do research for y’all first:) New and Engaging Documentary currently in Production seeks more cast members! Does someone you know or even yourself have Sickle Cell Disease? We are still seeking individuals and families willing
Sickle Cell Documentary Read More »
I’m sure many sickle cell warriors can relate to having near death experiences. I’ve been deathly ill a quite a number of times, but out of those numerous admissions, only once can I quantify as being near death. The first was in 1993. I had Malaria, Cholera, and Pneumonia when I was 13 in Nigeria.
Near Death Experiences with Sickle Cell Read More »
One of my readers who has been on Nicosan for about a year now, has written this wonderful review that I would like to share with everyone. If anyone else has a Nicosan story that they would love to share; good, bad or indifferent; please send it my way. Also, if you would like to
Nicosan Testimonial Read More »
SICKLE CELL DISEASE AWARENESS STAMP In 2004 the Sickle Cell Disease Awareness Stamp was created as a part of the U.S. Postal Service’s stamp program that celebrates the people, events and history of our nation. It also served as another way for the U.S. Postal Service to continue its tradition of raising public awareness of
Sickle Cell Disease Stamp —Do Your Part! Read More »
