SCW Video: Be An Advocate
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WORLD SICKLE CELL DAY 2019!
Happy World Sickle Cell Day! Your story matters! I hope you are sharing your story today in some way…after all, it’s your sickle cell birthday! In honor of today, SCW is proud to announce the start of The Unbreakable Warrior Project, a coffee book with esteemed photojournalist Heather Avant! Show off your warrior scars and
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GBT Announces Updated 24-Week Efficacy Data
All Patients Enrolled in Phase 3 HOPE Study Showing Statistically Significant and Sustained Improvements in Hemoglobin with Voxelotor Global Blood Therapeutics, Inc. (GBT) today announced new results from its Phase 3 HOPE Study of voxelotor in patients ages 12 and older with sickle cell disease (SCD). The findings from 274 adolescents and adults treated with
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FREE Webinar: Hydroxyurea for SCD
June 25, 2019 6:00 – 7:00 p.m. Eastern time This webinar will provide information on hydroxyurea, share a story from an individual who has taken hydroxyurea, and feature sickle cell disease experts who will answer questions the audience may have. The webinar will focus on the use of hydroxyurea in young adults and adults. Register
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SC Community receives Grants from Novartis STEP Program
Five nonprofit organizations to receive up to $250,000 through Novartis STEP Program™ to support sickle cell patient initiatives The Solutions to Empower Patients (STEP) Program™ continues to help nonprofit organizations deliver new solutions to address unmet patient needs This year’s focus is on addressing some of the most pressing issues in the sickle cell disease
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Sickle Cell Society 40th Anniversary Gala Ball
The Sickle Cell Society is excited to invite you to our 40th Anniversary Gala Ball. Hosted in the spectacular Royal National Hotel in Central London, the 40th Anniversary Gala Ball celebrates 40 years of working within the sickle cell community. You are invited to join the celebrations, starting with a red carpet drinks reception attended
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SCDAA National Convention
Sickle Cell Disease Association of America’s 47th National Convention October 9-12, 2019 Baltimore, MD The National Convention is a four-day conference designed to address the multi-factorial aspects of SCD and sickle cell trait. In an effort to advocate for improved quality of life for individuals and families affected with SCD and its associated morbidity and
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