Genetic Testing for Families Affected by Genetic Recessive Disorders DNACheckup is a fairly new non-profit organization. It is geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic disorders. First, patients can order the tests online. Tests ship directly to the person who orders them. We work with the lab […]
Genetic Testing for Families Read More »
10th Annual SCD Educational Meeting The 10th Annual SCD Educational Meeting is a forum to discuss combining types of medicine. In addition, discussions include future trends for treating patients with sickle cell disease and trait. So, attendees will hear information from new research and medication. Learn how to get your voice heard with government and
10th Annual SCD Educational Seminar: Integrative Medicine and Sickle Cell Disease Read More »
World Sickle Cell Day Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and awareness of sickle cell disease on a global scale. For us warriors, it is like your sickle cell birthday!!! We have
World Sickle Cell Day 2018 Read More »
On World Sickle Cell Day, Sickle Cell Warriors Takes Action to Improve Global Health Outcomes Sickle Cell Warriors, American Society of Hematology, and other SCD partners debuts a PSA and resources library. These will help improve newborn screening and early care for children in Africa living with sickle cell disease. (Encinitas, June 19, 2018)
Tomorrow, June 19, is World Sickle Cell Day! Read More »
Novartis to Mark World Sickle Cell Day with Events Please join us on June 19 for a worldwide Facebook Live Event in honor of World Sickle Cell Day. First, the event will feature a panel of global experts and advocates. They will appear live from Region Europe, LACan, EGM and the US. They will share their
Novartis to Mark World Sickle Cell Day with Events Read More »
Special Pricing on Books for World Sickle Cell Day!
Special Pricing on Books for World Sickle Cell Day Read More »
Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, the FDA is hosting a public meeting for people with pain. Therefore, the FDA wants to hear how people deal with chronic pain, how they feel about treatment approaches, and problems they have accessing treatments. Above all, they want to
Public Meeting for Patient-Focused Drug Development on Chronic Pain Read More »
Cayenne Wellness Support Group California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. Specifically, you get to meet others with SCD and get valuable info about improving your health. In addition, you also gain an understanding of how others cope
SCD Adult Support Groups in Southern California Read More »
Spoken Word Spoken word is an oral art. It melds words and phrases together in beautiful patterns. Intonation and undulation punctuate these patterns in spoken word. Take a moment to hear this amazing spoken word poet. Let’s shine a light on the world of sickle cell. We hope you are as moved as we are!
Sickle Cell Spoken Word Poetry Read More »
Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago. The article contains videos and text that will provide a new perspective for how SCD developed and continues to influence the lives of people who suffer
Tracing sickle cell back to one child, 7,300 years ago Read More »
