Living with Sickle Cell Archives - Sickle Cell Warriors Inc

Beyond the Pain: Honoring Strength, Inspiring Change on World Sickle Cell Day

Leave a Comment / Living with Sickle Cell / Samuel Oyeniyi

Each year, June 19 marks World Sickle Cell Day, a moment when the world pauses to acknowledge a reality that millions live with daily—but often in silence. At Sickle Cell Warriors, Inc., we believe this day is not just about raising awareness of a disease. It’s about uplifting a community. It’s about honoring resilience. And […]

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THE 16TH ANNUAL SICKLE CELL DISEASE RESEARCH AND EDUCATIONAL SYMPOSIUM AND 45TH NATIONAL SICKLE CELL DISEASE SCIENTIFIC MEETING

Newest Features, Resources, SC News and Research / SCW Team

5th Annual Sickle Cell Disease Access To Care Summit Friday, June 10th Healthcare Access in Sickle Cell Disease Plenary Session Curative Therapies & Gene Therapy Education Session The Patient Symposium 16th Annual Sickle Cell Disease Research and Educational Symposium Saturday, June 11th Education sessions on HealthTech, Healthcare Screening, Alternative & Adjunct Therapies Keynote Speaker Presentation

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Mental Health: Talk to Your Doc

Living with Sickle Cell, Newest Features / SCW Team

Doctor, I’ve been having pains for the past 3 weeks now and it isn’t getting any better, Regina explained as she sat restless by the doctor’s table. You see, one thing that has kept you in pain is that you’ve stressed yourself beyond what your body can carry and as a sickle cell patient, you

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8th grade author writes self-help book after overcoming health battle

Living with Sickle Cell, Parenting / SCW Team

BY SHEENA ELZIE CINCINNATI PUBLISHED 7:45 AM ET MAR. 02, 2022 MORROW, Ohio — The pandemic is bringing more attention to kids’ mental health. One teen is now trying to help through a new book she wrote. What You Need To Know Nyla Barnes, 13, authored a new self-help book to help kids cope with stress and

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A woman’s apparel with bag, shoes, and camera

Abi’s Wish Brings a Smile to Your Face

Living with Sickle Cell, Newest Features / SCW Team

Girl with sickle cell disease had a wish to be on a billboard. She and her twin now smile at passing cars in Md. Four-year-old twins Abigail and Valerie Makanjuola, with mother Olaide Daramola, in front of their billboard in North Brentwood, Md. Abi has a blood disorder, and as a Make-A-Wish recipient, her desire

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Family Therapy offered for Families in FL through SCW

Living with Sickle Cell, Newest Features, Resources / SCW Team

SCW is facilitating family therapy for families in Florida affected by SCD. Starting in November, meet online with a licensed psychotherapist specializing in Marriage & Family Counseling for 7 weeks in the convenience of your own home. By signing up, you will receive 7 weeks of personalized family therapy sessions for $100 per family. Sessions

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Migraine Proof Your Home

Living with Sickle Cell, Newest Features / SCW Team

Just a few simple changes can migraine proof your home–and make it a refuge if one does strike. In your bedroom: Hang thick curtains. Your bedroom can be an ideal migraine retreat. Thick or black-out curtains will keep the room dark and cool, and can even help dampen outside sounds. Consider a humidifier or dehumidifier.

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10 Ways to Improve Your Mental Health

Living with Sickle Cell, Newest Features / SCW Team

Don’t neglect your mental health. When we talk about being healthy, it is typically just about physical health. But rarely do we think of our mental health when we’re having that conversation—and black women, we have to stop doing that. Studies show we have higher levels of stress, anxiety and depression than most other people.

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Eat These Foods For a Restful Night’s Sleep

Living with Sickle Cell, Newest Features / SCW Team

Sleeplessness has been linked to a variety of ills, including memory problems, lack of focus, weight gain and high blood pressure. And, yes, you can admit it: When you don’t get your eight hours in, you’re just plain cranky. (Oh, wait, that’s me!) If you’ve tried everything, from counting sheep to reading James Joyce novels,

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A diffuser on top of a table in the living room

The Benefits of Aromatherapy

Living with Sickle Cell, Newest Features / SCW Team

Research on the effectiveness of aromatherapy — the therapeutic use of essential oils extracted from plants — is limited. However, some studies have shown that aromatherapy might have health benefits, including: Relief from anxiety and depression. Improved quality of life, particularly for people with chronic health conditions. Smaller studies suggest that aromatherapy with lavender oil may help: Make

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