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Los Angeles SCD Clinical Trials Network Workshop

Join the ASH Research Collaborative for a series of fun and engaging Sickle Cell Disease Community Engagement Workshops this spring and summer, throughout the...

Comments on Practice Guidelines for SCD

The American Society of Hematology (ASH) is seeking comments on two additional draft clinical practice guidelines on sickle cell disease (SCD): pain and transplantation....

SCW Video: Fatigue

https://www.youtube.com/watch?v=wgHk756uCT4

SCD Cure through Stem Cell Transplant

Exciting news!! Akshat Jain, MD, Director of Pediatric Hematology-Oncology at Loma Linda University Children's Hospital and his team cures a Sickle Cell Disease patient through...

Sickle Cell Phone Survey Opportunity for Patients and Caregivers!

This patient and caregiver survey seeks to understand the experience sickle cell patients have had with their disease as well as their interaction with...

Webinar “What’s New at SCDAA”

SCDC Sickle Cell Data Collection program Register for Webinar "What's New at SCDAA" Wednesday, April 24, 2019 10:00 AM - 11:30 PM PST Register now:  https://attendee.gotowebinar.com/register/1778776015181580301     Presented by Ms. Beverley Francis-Gibson, SCDAA President...

Support the Global Genes Team

Global Genes has formed a running team for the OC Marathon to raise money and awareness for rare disease community activities.  Warriors - join...

SCD Clinical Trials Network Workshops

ASH Research Collaborative Hosts SCD Community Engagement Workshops Join the ASH Research Collaborative for a series of fun and engaging Sickle Cell Disease Community Engagement...

SCW Video: Iron Overload And Fatigue

https://www.youtube.com/watch?v=DJTqiHUeYok&t=1s

SCW Video: Water

https://www.youtube.com/watch?v=FRdoEUxQbXA&t=195s
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