Sickle Cell Warriors

Tag "Living with Sickle Cell"

    7th Annual Sickle Cell Disease Therapeutics Conference

7th Annual Sickle Cell Disease Therapeutics Conference

The 7th Sickle Cell Disease Therapeutics Conference is a forum to discover the latest advancements and future trends impacting the sickle cell community.  Conference attendees will hear from innovative industry leaders, patients, physicians, community based organizations and biotech companies. For more information about the conference, email scdconference@gmail.com Registration is required. Click

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    2018 SCD Seminar & Hotel Registration

2018 SCD Seminar & Hotel Registration

Reserve Your Hotel Room Today! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means, for $25 the SCD Warrior gets: A bus ride to Sacramento from one of 5 routes To stay four nights at one of the best

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    S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the Sickle Cell Disease Research, Surveillance, Prevention, and

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    Sickle Cell Patient & Family Educational Symposium

Sickle Cell Patient & Family Educational Symposium

The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community.  Now in its fifth year, the meeting has grown in size and scope. Each year the meeting is hosted by a

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    5th Annual Sickle Cell Disease Patient & Family Educational Symposium

5th Annual Sickle Cell Disease Patient & Family Educational Symposium

YOU’RE INVITED! The Patients, Caregivers and Community-Based Organizations of the Sickle Cell Community Consortium are pleased to invite you to attend the 5th Annual Sickle Cell Disease Patient & Family Educational Symposium from July 18-22, 2018 in Memphis, Tennessee!  www.sicklecellconvention.com ABOUT THE SYMPOSIUM The Sickle Cell Disease Patient & Family Educational Symposium (known throughout the

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    Genetic Testing for Families

Genetic Testing for Families

Genetic Testing for Families Affected by Genetic Recessive Disorders DNAcheckup is a fairly new non-profit organization geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic disorders. Patients can order the tests online, which will be shipped to them directly. We work with the lab GeneByGene

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    Tomorrow, June 19, is World Sickle Cell Day!

Tomorrow, June 19, is World Sickle Cell Day!

On World Sickle Cell Day, Sickle Cell Warriors Takes Action to Improve Global Health Outcomes Sickle Cell Warriors, with the American Society of Hematology and other Sickle Cell Disease Coalition partners, debuts a public service announcement and global resources library to help improve newborn screening and early care for children

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    Special Pricing on Books for World Sickle Cell Day

Special Pricing on Books for World Sickle Cell Day

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    SCD Adult Support Groups in Southern California

SCD Adult Support Groups in Southern California

California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with SCD and get valuable info about improving your health. You also gain an understanding how others cope with SCD, share

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Free and Almost Free Ebooks by April Farrell-Hasty

If you have an e-reader or an iPad or tablet, then you want to get some free books! When I don’t feel well, sometimes all I do is read or study.  I have always loved to read, since I was a child. I have had an e-reader from almost the

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    How to Travel Safely with Sickle Cell April Farrell-Hasty

How to Travel Safely with Sickle Cell April Farrell-Hasty

I write this as many warriors will be traveling soon. I have traveled extensively and frequently as a yoga teacher trainer that teaches at yoga retreats in exotic destinations. Here is what I have learned. Always see your doctor before you travel.  There are many reasons for this. First, you

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    Rainy Lake Medical Center, International Falls, MN – Negative Review

Rainy Lake Medical Center, International Falls, MN – Negative Review

Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be

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    Avascular Necrosis, Hip Replacements and Sickle Cell

Avascular Necrosis, Hip Replacements and Sickle Cell

What to do with AVN when you are young? See the message below! I am young (in my early 20s) and I had a hip replacement one and a half years ago. I had AVN in my left hip which progressively got worse over the course of 8 years to

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    Sickle Cell and the Key to Happiness

Sickle Cell and the Key to Happiness

The Key to Happiness November 11, 2017  Written by: crystalmccrory32 My son has a form of sickle cell anemia that has caused him great pain and suffering throughout his life. It often impedes his physical abilities, sidelining him for important events and milestones other children seamlessly enjoy.  This past year

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    New Year, Healthier New You!

New Year, Healthier New You!

If your new year’s resolution is to improve your lifestyle, health, and body, here are a few tips to get you headed in the right direction.

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