Tag "Living with Sickle Cell"
Livestream of FDA-ASH SCD Clinical Endpoints Workshop October 17-18, 2018 The FDA-ASH Sickle Cell Disease (SCD) Clinical Endpoints Workshop aims to identify opportunities to bring uniformity and standards to existing SCD endpoints, identify gaps, and propose development of new endpoints as a focus for future research. Due to the high
VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally on your phone, so it’s private. In addition to being a crisis pain tracker tool storable for 90 days with
Get the Match Livestream September 28 1 pm – 4 pm PST (8:00 pm – 11 pm GMT) There is a point in which all of us living with SCD will consider undergoing a bone marrow transplant to see if it can help our condition. Although there have been success
Do you love to write? Are you a social media master? Do you create amazing graphic designs? Apply today to become part of the Sickle Cell Warrior’s team! SOCIAL MEDIA CONTENT CREATORS We are looking for 7 social media content creators who can manage each of our social media accounts.
Sickle Cell Disease Therapeutics Conference on September 13, 2018 Global Blood Therapeutics (GBT) will host the 7th Annual Sickle Cell Disease Therapeutics Conference (SCDTC) at the Park Central Hotel in New York City on September 13, 2018. This annual meeting brings together healthcare professionals, patients, community based organizations and advocates,
The 7th Sickle Cell Disease Therapeutics Conference is a forum to discover the latest advancements and future trends impacting the sickle cell community. Conference attendees will hear from innovative industry leaders, patients, physicians, community based organizations and biotech companies. For more information about the conference, email scdconference@gmail.com Registration is required. Click
Reserve Your Hotel Room Today! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means, for $25 the SCD Warrior gets: A bus ride to Sacramento from one of 5 routes To stay four nights at one of the best
S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the Sickle Cell Disease Research, Surveillance, Prevention, and
The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community. Now in its fifth year, the meeting has grown in size and scope. Each year the meeting is hosted by a
YOU’RE INVITED! The Patients, Caregivers and Community-Based Organizations of the Sickle Cell Community Consortium are pleased to invite you to attend the 5th Annual Sickle Cell Disease Patient & Family Educational Symposium from July 18-22, 2018 in Memphis, Tennessee! www.sicklecellconvention.com ABOUT THE SYMPOSIUM The Sickle Cell Disease Patient & Family Educational Symposium (known throughout the