Checking in

Hey everyone, How is it going? I’ve been busy, working alot at the same time trying to ace my Statistics class….grrrrr, I totally hate it! So far I’m hanging on to my A average by the skin of my teeth, but it’s been a struggle, I’ve spent more time studying for this class than I…

Read More

Announcements, Announcements, Announcements!

Hey everyone, If you have gotten your Nicosan shipment and would like to take part in a study regarding that documents the benefits of Nicosan please email me. I’m also interested in Hydroxyurea users or people that use other drugs and alternatives. I’m trying to conduct a pain survey that observes the different non-traditional treatment…

Read More

Changing the Image

Okay sickle cell warriors, it’s time for some frank talk. I’m sick and tired of hearing how lazy people with sickle cell are. I’m sure that the majority of us aren’t…but for some reason, the public has the notion that we are just milking ‘the system’ for our pain, are too lazy to get a…

Read More

New Years

Happy New Year everyone! I hope this year brings much success, less pain and more love! Smooches!

Read More

Road Trip!!!

So I just did a cross country road trip down 101. Whoever said people with sickle cell could not drive long distances obviously has never met me. I drove 997 miles from Portland, OR to Santa Barbara, CA…all by my wonderful, fabulous self! Much to the consternation of my parents, who wanted me to take…

Read More

WOOHOO!

Happy Birthday to me! Okay, so here’s a big *womp,womp* to all the doctors that said I wouldn’t live past my 10th birthday. I’m 28! Nanananabooboo!

Read More

Let’s Play Catchup

What’s good fam? Has it really been that long? I can’t believe we are midway through Sept and I haven’t posted a thing. Sorry to all the folks that emailed me, with no response—I haven’t been sick, I’ve just be drowning in a sea of too many responsibilities. Work: has been a bust. What started…

Read More

I’m Alive

Okay, so I didn’t plunge 14,000 feet to my death! It was soooooo fun that I’m ready to do it again. Norio was being so ‘cautious’ and he doesn’t believe in risking your life for no reason…he didn’t even go up! Personally it’s one of the most exhilarating things I’ve ever done. Live outside the…

Read More

Catch Up

Wow, it’s been 10 days since my last post. Part of the reason is that I’ve been out of town chilling with my family in Indiana. The flight’s were long but I had no problem. No crises and very minimal pain to speak of. Another thing happening is that I’ve been revving up for my…

Read More

No Pain

Check this out—this is my first week ever since I hit puberty that I haven’t had to take any narcotics. That’s intense! I haven’t had any L3’s at all and barely any L2’s. In fact, the only thing I’ve taken this whole week since Monday last was 600mg of Motrin a few times. Now I…

Read More