Sickle Cell Warriors


 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Silent Strokes Found in Children with SC

A couple of weeks ago on the FB page, a mother told me that her child was diagnosed with silent strokes that caused developmental delays in her son. This was my first knowledge of this phenomenon, and since then; John’s Hopkins University has released a study that found that 6% of children with sickle cell suffer from small bleeds in the brain which may lead to strokes and seizures in the future.

This is not a cause for alarm, but it’s recommended to get your child checked out with an MRI to see if they are at risk. Aggressive early therapy can limit the damage that may occur. Read the full abstract of the research study HERE.

About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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  1. Vickie Udumah
    Vickie Udumah April 05, 17:20

    My niece is a Sickle Cell carrier This was noted since she’was about few months from birth and she’s been in and out of the hospital,Now I have noted that she is limping on LT leg she just 5years plus and she is in Africa X-ray was done on her LT hip area the showed an area which the Dr recommend surgery and refer her to Ortho Dr and i don’t know how to help her and her parents said the ortho Dr wants to do surgery,Is surgery advisable or is there another option? please help.I wish I can bring her here and put her on my insurance and take care or her any please help.

  2. Uzo
    Uzo April 26, 02:17

    What part of Africa? There are Foundations in Nigeria with experts supporting sickle cell patients. Find out more about the hospital she’s being receiving treatment. Get as much info as possible. Try google sickle cell foundation Lagos.

  3. Sickle Cell Warrior
    Sickle Cell Warrior Author June 03, 16:12

    @Vickie, it sounds like she may have early onset Avascular Necrosis. We have an article about it in the Complications section. It discusses the treatment options as well. Good luck.

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