Sickle Cell Warriors


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  • Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017 Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference from New York City on September 14 at This is...
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Silent Strokes Found in Children with SC

A couple of weeks ago on the FB page, a mother told me that her child was diagnosed with silent strokes that caused developmental delays in her son. This was my first knowledge of this phenomenon, and since then; John’s Hopkins University has released a study that found that 6% of children with sickle cell suffer from small bleeds in the brain which may lead to strokes and seizures in the future.

This is not a cause for alarm, but it’s recommended to get your child checked out with an MRI to see if they are at risk. Aggressive early therapy can limit the damage that may occur. Read the full abstract of the research study HERE.

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About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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  1. Vickie Udumah
    Vickie Udumah April 05, 17:20

    My niece is a Sickle Cell carrier This was noted since she’was about few months from birth and she’s been in and out of the hospital,Now I have noted that she is limping on LT leg she just 5years plus and she is in Africa X-ray was done on her LT hip area the showed an area which the Dr recommend surgery and refer her to Ortho Dr and i don’t know how to help her and her parents said the ortho Dr wants to do surgery,Is surgery advisable or is there another option? please help.I wish I can bring her here and put her on my insurance and take care or her any please help.

  2. Uzo
    Uzo April 26, 02:17

    What part of Africa? There are Foundations in Nigeria with experts supporting sickle cell patients. Find out more about the hospital she’s being receiving treatment. Get as much info as possible. Try google sickle cell foundation Lagos.

  3. Sickle Cell Warrior
    Sickle Cell Warrior Author June 03, 16:12

    @Vickie, it sounds like she may have early onset Avascular Necrosis. We have an article about it in the Complications section. It discusses the treatment options as well. Good luck.

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