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Living with Sickle Cell

Posts feature topics on work, school, travel, life, diet and all other coping strategies with sickle cell.

Support the Global Genes Team

Global Genes has formed a running team for the OC Marathon to raise money and awareness for rare disease community activities.  Warriors - join...

SCD Clinical Trials Network Workshops

ASH Research Collaborative Hosts SCD Community Engagement Workshops Join the ASH Research Collaborative for a series of fun and engaging Sickle Cell Disease Community Engagement...

SCW Video: Iron Overload And Fatigue

https://www.youtube.com/watch?v=DJTqiHUeYok&t=1s

SCW Video: Water

https://www.youtube.com/watch?v=FRdoEUxQbXA&t=195s

FDA Public Meeting – Patient Perspectives on the Impact of Rare...

Registration Open: FDA Public Meeting - Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities On Rare Disease Day, FDA announced the Agency will host...

SC and CBS 60 Minutes

On Sunday, March 10 at 7:00 p.m. ET, NIH Director Dr. Francis Collins and NIH senior investigator Dr. John Tisdale will be part of a CBS 60 Minutes segment on...

Progress in Gene-Editing Therapy

Exciting news! CRISPR Therapeutics and Vertex Announce Progress in Clinical Development Programs for the Investigational CRISPR/Cas9 Gene-Editing Therapy CTX001. They have dosed the first...

SCW Video: Pain From A Shower

https://www.youtube.com/watch?v=gmnWqt_m_Sk&t=14s

ASGCT Patient Education on Blood Disorders

What is this? The American Society of Gene & Cell Therapy (ASGCT) is proud to announce the first release of the Society's Patient Education program,...

Manual For Life by Paulo Andre Chenso

PAULO ANDRÉ CHENSO is a doctor and professor in London. He created a "MANUAL FOR LIFE". IT'S WORTH A READ AND TO PUT IN PRACTICE. IN THE...
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