Sickle Cell Warriors

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  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Beautiful July…

Hello! What’s up everyone?

I’m still here, chilling in Portland, enjoying wonderfully beautiful summer days. For the 4th, of course I hit up the waterfront and did the fireworks thing…it wasn’t as spectacular as last year (dratted economic crises!), but it was decent.

When I was leaving my house that hot summer afternoon, my friend asked me why I was carrying my bulky sweater with me. Later that night as she shivered in the arms of her beau, I wrapped myself in my blanket and sweater, comfortable and warm. I guess having sickle cell has taught me to always be prepared for the cold!

On the Nicosan front have no fear peoples. The winds of change and progress are making their way slowly but surely to us. Hopefully things in Nigeria with XECHEM will be resolved soon.

As you can see, my blogging has become once a week. If you have a question that you would like answered about sickle cell anemia, shoot me an email or leave a comment. I’m not expert, but I can only tell you how I’ve dealt, am dealing and coping with the issues that SSA brings.

Ciao!!

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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