Hey everyone, we have been asked to involve the community in a research sampling. We just need a few participants to answer the questions below, and email it back to us. We will then forward to the researcher. Please email tosin@sicklecellwarriors.com with the answers. Try to use the same format, and just include your answers. Thanks
Questionnaire on the use of stem cells to treat sickle cell anaemia
This questionnaire will contribute to an EPQ qualification, which is a research project done in the sixth form. The results will be kept confidential and only used for the purpose of the project. Participants have the right to withdraw at any time.
Age: …………. Gender: ………………..
- What treatment have you had so far to treat sickle cell anaemia?
Please tick.
| Medication | |
| Gene therapy | |
| Bone marrow transplant |
If other, please specify …………………………………………………………………………
- Have you, or anyone you know, had stem cell treatment to treat sickle cell anaemia? This could be using bone marrow, placenta, umbilical cord or any other source of stem cells. Please circle or delete appropriately.
Yes No
If yes, how old were you/they when the treatment was done? ………….
From what source where the stem cells (bone marrow, umbilical, etc)?
…………………………………………………………………………………………………
Do you/they feel the stem cell treatment was successful? Please circle or delete appropriately.
Yes Partially No
Why? ………………………………………………………………………………………………………………………………………………………………………………………………………………….
- How well informed do you feel about the use of stem cell treatment to treat sickle cell anaemia? Please circle or delete appropriately.
Very well Well Okay Not well Not informed
- Would you consider having stem cell treatment yourself? Please circle or delete appropriately.
Yes Not sure No
Why? ………………………………………………………………………………………………………………………………………………………………………………………………………………….
- Please indicate whether you have read, seen or heard anything about these new treatments that are currently being trailed to treat sickle cell anaemia.
| Treatment | Yes/No |
| Partial bone marrow transplant for adults | |
| Using stem cells from the umbilical cord | |
| Using stem cells from the placenta | |
| Using induced pluripotent stem cells |
- In your opinion, could any of these new treatments have the potential to successfully cure sickle cell anaemia in the future? If so, which ones and why?
…………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………