Today is my first day back to work since my sister’s wedding. Hopefully my lazy self will be able to survive it…lol. I’ve had way too many days off. Although my check is going to be thin next Friday, I’m glad that I took some time off to relax and rejuvenate. I needed it so […]
Okay everyone, as you can see I’m back, alive and well. I survived both flights with only L3s on the first one (which I quickly handled with a double dose of Vicodin/Benadryl) and L2s on the return trip. I did remember to walk every hour up and down the aisle and drank water like it
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I know all you parents are going to jump on the bandwagon and tell me that I shouldn’t be mad at my parents…but truthfully, I’m livid! Today I was in an EKG class with 2 other Nigerians who just happened to both have kids with sickle cell. The guy, his daughter of 9 months just
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As you know one of the precursors of an exacerbation is flying at high altitudes. Although a pressurized cabin is highly recommended—even this manages to trigger a sickle cell crises. Usually I’ve been fine flying with only minor L2s if anything but usually I didn’t live in California and have to fly back east on
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Hey peoples! The good news is that I’m still not sick. The bad news is that it’s been 3 months already. My intuition is silently ticking that there is a crises coming around the corner give or take 3-4 weeks. The thing about this is that although sometimes a crises catches me totally unawares, for
My ticker officially hit the 3 month mark. Go Me! If I were to look at the glass half full, that means I’ve been well with no major sickle cell crises’ for 3 months. If I were to look at the glass half empty, that means that another crises is around the corner. Okay, I’m
Yesterday I worked with a nursing agency. I got floated to the unit where I was sick in December! It was weirdly uncomfortable as you can imagine. The first nurse I ran into said, “Your face is so familiar,” and as soon as I said my name she exclaimed, “Yeah, you were a patient here
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I wrote this years ago, what was going through my mind when a crises hit me. It’s kinda long, but really loopy. It’s also really convoluted, I wrote this under the influence, I’ve tried editing but even I can’t decipher the craziness that is the talk between my brain, my body and my spirit. Tuesday
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Living with sickle cell means living with chronic and acute pain. I have pain every single day of my life…sometimes it’s worse than others, and sometimes it’s just minor twinges that I can will away. I actually have a very high pain thresh-hold, I go for as long as possible without taking pain meds because
