The Ticker says…
Four months. Gulp.
Living with Sickle Cell
Flying With Sickle Cell Revisited
Okay everyone, as you can see I’m back, alive and well. I survived both flights with only L3s on the first one (which I quickly handled with a double dose of Vicodin/Benadryl) and L2s on the return trip. I did remember to walk every hour up and down the aisle and drank water like it
Flying With Sickle Cell Revisited Read More »
I’m Mad at My Parents
I know all you parents are going to jump on the bandwagon and tell me that I shouldn’t be mad at my parents…but truthfully, I’m livid! Today I was in an EKG class with 2 other Nigerians who just happened to both have kids with sickle cell. The guy, his daughter of 9 months just
I’m Mad at My Parents Read More »
Flying with Sickle Cell
As you know one of the precursors of an exacerbation is flying at high altitudes. Although a pressurized cabin is highly recommended—even this manages to trigger a sickle cell crises. Usually I’ve been fine flying with only minor L2s if anything but usually I didn’t live in California and have to fly back east on
Flying with Sickle Cell Read More »
Ague
Hey peoples! The good news is that I’m still not sick. The bad news is that it’s been 3 months already. My intuition is silently ticking that there is a crises coming around the corner give or take 3-4 weeks. The thing about this is that although sometimes a crises catches me totally unawares, for
Celebration
My ticker officially hit the 3 month mark. Go Me! If I were to look at the glass half full, that means I’ve been well with no major sickle cell crises’ for 3 months. If I were to look at the glass half empty, that means that another crises is around the corner. Okay, I’m
Working Where I Was Sick
Yesterday I worked with a nursing agency. I got floated to the unit where I was sick in December! It was weirdly uncomfortable as you can imagine. The first nurse I ran into said, “Your face is so familiar,” and as soon as I said my name she exclaimed, “Yeah, you were a patient here
Working Where I Was Sick Read More »
Diary of a Crises
I wrote this years ago, what was going through my mind when a crises hit me. It’s kinda long, but really loopy. It’s also really convoluted, I wrote this under the influence, I’ve tried editing but even I can’t decipher the craziness that is the talk between my brain, my body and my spirit. Tuesday
Pain Scale
Living with sickle cell means living with chronic and acute pain. I have pain every single day of my life…sometimes it’s worse than others, and sometimes it’s just minor twinges that I can will away. I actually have a very high pain thresh-hold, I go for as long as possible without taking pain meds because
Jaundice
I was looking at some pictures I took last week and man, I look so jaundiced. Ick! For those of you that don’t know, jaundice is a condition caused from the increased production of bile pigments in the blood. It usually affects people with all kinds of liver diseases but it affects Sickle Cell Warriors