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Living with Sickle Cell

Posts feature topics on work, school, travel, life, diet and all other coping strategies with sickle cell.

Thank You!!

  Thank you for your donation and your support in the fight to end sickle cell disease!  Your transaction has successfully completed. You should be...

My Nicosan Story

Here is a question that I got from a reader on Nicosan that I would like to address:A friend of mine just started on...

Nicosan News

Okay, sorry I haven't been posting in a while...real life has me in knots. But...I'm very heartened by all the wonderful emails I've been...

Nicosan Updates

There seems to be some hope on the horizon for Nicosan. I can't go into details yet, but I will once the changes have...

Water of Life

Water is one of the cornerstones of a healthy sickle cell patient. There is no substitute to water.

Flying With Sickle Cell Revisited

Okay everyone, as you can see I'm back, alive and well. I survived both flights with only L3s on the first one (which I...

6th Annual Sickle Cell Patient & Family Educational Symposium

July 24 - 28, 2019 Plano, TX The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created,...

10 Things Good About Sickle Cell

Okay, I'm not here just to whine and complain. So in the spirit of giving thanks, I'm listing the top 10 reasons I can...

Sickle Cell and Memory Problems

This entry is long, but so useful if you are having problems with your memory, and getting tasks accomplished at work, school, or home because of sickle cell.

Sweet Remedy!

If your child has had issues or trouble taking medications, this post is for you. ElleJenae gives us the sweet remedy that she learned from her mom which gets her baby girl to take her meds every single time.
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