Last week when I saw my hematologist, he encouraged me to be part of a support group. Norio has been pushing for me to join one for months, but I’ve always resisted. Besides the support I got from my friends, family, this blog and the online forum, I didn’t think I needed anything else. He […]
Sickle Cell Support Group Read More »
Choosing nursing as a major was an easy decision for me to make. I’ve always been interested in being a nurse, especially since I noticed that when I was sick, the nurse was the one that had the most input into my well-being and care. I went straight from high school into college at Oakwood,
Getting Through Nursing School with Sickle Cell Read More »
I was at work last night, another late 12 hour nocturnal shift. Everything was going okay until around 4am when I got hit by major pains. It’s unethical to be popping pain pills when I have the lives of other people in my hands so I just gritted my teeth and tried to bear it.
Admitting I’m Not a Super Woman Read More »
One of the commonalities of sickle cell warriors is that fact that after a zillion hospital admissions and ER visits, eventually, our veins go into hiding from all the trauma. The medications that help us also help to scare the beejesus out of our veins as well as all those blood draws! My hands are
For some reason, the medical profession, especially in the US has a limited view of sickle cell. First of all, they think that people with the trait can’t have pain—THAT IS A MYTH! Just because they don’t have the full out disease, doesn’t mean that pain doesn’t exist in the life of a carrier too.
Going to the ER with Sickle Cell Read More »
Okay, it’s decided, we are going to MAUI!!! WOOHOO! I’ve never been to Hawaii so this is going to be a great one for me. The trip is planned for right after my current work contract, I can’t wait! In other news I’m doing great, not much to report on anything. My health is good,
“Hey, lets go skiing this weekend,” my hubby said this morning. I stared at him. “Baby…what is my name? Do you know me?” I asked staring at him drolly. “Oh yeah,” he continued with a laugh. “Skiing probably isn’t good for you because of the cold and the high altitude…” “Precisely. Let’s go somewhere hot
This post is for Kem. When I was younger, my parents kept my sickle cell a huge secret. They didn’t want me categorized and stigmatized as a Sickler. Although it was a good move in some areas on their part, it left me feeling like I was living a double life. When I was out
Sickle Cell — The Big Secret Read More »
Now my doctors are trying to get my on Hydroxyurea like hardcore. I’m still scared about it. I know some people have used it with lots of great results, but those side effects are no joke—AND NOT BEING ABLE TO HAVE CHILDREN?? That is some crazy shit. Well, the main thing is that if you
Hydroxyurea & Infertility Read More »
