Hey everyone,
I just wanted to congratulate you for making it through today. As a sickle cell Warrior myself, I know that having sickle cell can be very hard. Every day is a constant struggle dealing with pain, fatigue, family drama, work responsibilities and just activities of daily living. This is why I call us warriors because we face each day in battle knowing that everything is a challenge.
My very first speech that I gave I remember saying that sickle cell Warriors are the strongest people that I know. It is because of our inner fortitude and strength that we are able to achieve our dreams and live our lives to the best of our abilities. Even if no one notices because they cannot understand what we go through, I want you to know that I noticed and I am proud of you.
You are a beautiful, wonderful, spiritual, intelligent, strong being. The world is so much better with you in it. You were put here for a purpose. It is up to you to find that purpose and achieve that purpose. Whether it is touching someone’s life with your story, helping out a friend or family member in need, or living your life as a testimony for others there is something that you were put here to do.
You are the only person that can do it. No one else can fulfill your destiny but you. Let us find what our purpose is today. I am a great believer in positive affirmations. Even when the chips are down, having something positive that is greater than yourself, that you believe in, and that makes you a stronger person is very essential. My affirmation is that constant belief that I was put here for a purpose.
Please spend some time in reflection and meditation and ask God or the universe, what your purpose is today.
Love and life,
Sickle Cell Warrior.
Hi Tosin!
It’s been really helpful reading your blogs on sickle cell! Thanks so much for your labour and efforts to support and encourage!
I have a question… My girlfriend has sickle cell. At the age of 28 she’s only ever had two crisis in her life (although she has been admitted to hospital for other reasons like infections and such). We’ve been dating for 9months and for the most part it’s been such a joy. But I find that some evenings, I can’t even reach her! She’d just go AWOL. Completely MIA! She can sleep so easily and I can imagine sometimes a post-work nap can turn into a long sleep, so much so that when I call her in the evening, she’s no where to be found.
I get so worried and anxious about this when I can’t reach her. Often I get really frustrated too because it seems unfair that she didn’t tell me.
Is this expected behaviour even from someone with perhaps a milder form of SCD? Can you relate to an issue like this causing strain on a relationship? How do I deal with days like this where it’s frustrating to not be able to check in on a loved one?
I’d so love to hear from you on this!
Thanks in advance!
Quite a piece, kudos to you warriors.
I actually appreciate your efforts in giving meaning to life for sickle cell warriors.
I am a sickle cell warrior but sometimes my faith fails me. I have been mocked by so many people. Please I need help because my world seems to be crumbling.