Sickle Cell Warriors


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  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Warrior Parents: Know When It’s Time to Go!

Warrior Parents: Know When It’s Time to Go!

In today’s society, almost no one will understand you position in caring for your little warrior. When you feel your job title changes to “Problem Employee/Always Absent Employee” then it’s time to make a plan for you to exit stage left. God has placed in us all gifts and talents needed to provide an income for us. All we need to do is to tap into what that is, make a plan and move in its direction.

Working for yourself maybe the only way to save you from adding hurt to injury. Your child already faces so many painful challenges everyday so keeping your plate clear of personal challenges would make your life easier. I believe entrepreneurship is for everyone in some form or fashion, especially for parents of young warriors. God will never let you lose one source without providing a better one! So at this junction in your life, if your job does not understand your child’s battle with Sickle Cell, it’s time to go and hire yourself!

Clear your mind and brainstorm on what your passion is. What is it that you can do to take care of your household that will never feel like work? Nine times out of ten, that is what your passion is. Do research on how to turn that into a business. It maybe thousands of people working for themselves doing the same thing or it may be a new business you create. Next, you must take that first leap of faith and think big. There are books, webinars, and business mentors that will help you along the way. Also check out free resources in your area or city for help starting out. Read everything you get your hands on about the business you’re interested in or in general how to start a small business. Talk to other entrepreneurs, and join the Small Business Administration to take advantage of all their free information. Look and apply for starter grants and loans if you so choose, to get you started. There are so many options these days from working at home, starting an online business or partnering with an already established company to work independently. The options are numerous; you just have to find what works for you.

It’s true; where there is a will; there is always a way. Nothing is impossible when you have faith to do it! Having a child with a chronic illness, majority of the time, will not be understood and you need to be okay with that. Don’t be angry, but instead use it as motivation to find your greater purpose. Take your pain and let it sky rocket you into your greatness. It will be hard, and will take a lot of courage and determination. But at the end of the day, when you are self-employed, the only person who can fire you is you!


About Author

Elle Jenae

Elle Jenae

My name is Louisetta Williams and I’m a proud single parent of a 4 beautiful girls ages 18, 13, 8, and 5. I love to refer to my daughters as my Z-babies because all their names start with a “Z” and online I often call them Z1, Z2, Z3 or Z4 in accordance of their birth order. My youngest Z-baby is 5 years old and she is my Sickle Cell Warrior. I work as a research assistant at the American Academy of Pediatrics where we research diseases that affect children all over the world. I love my job because our research helps enhance children’s health worldwide. My passions outside of work are reading, doing family activities, going to church, writing and helping people in any way I can. I wanted to write for Sickle Cell Warriors because I want to be the voice for parents who fight for their Sickle Cell Warriors daily. I believe by sharing my experiences, research and testimonies of how I cope with dealing with an ill child; I can help someone. I want to be an advocate for SCD parents who sacrifice so much and let them know that it’s okay to be perfectly imperfect.

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  1. Solo
    Solo August 20, 11:49

    Hello Louisetta! I LOVE your spirit!
    I too believe that “It’s okay to be Perfectly imperfect”!But most of all, I believe that sickle cell is NOT a death sentence. I devoted my life to raising my only child with the health condition of sickle cell and I did it with ease and success because of one thing: faith. I want to help mothers around me and around the world who still think that sickle cell is a death sentence. I have the proof that that it is not; I have a story to tell!
    Please spread the word! Do not hesitate to pass on my info to a possibly struggling mother who just wants to talk! please check out my public page-Solange Mbida- on Facebook and share.

  2. Farah
    Farah November 10, 15:43

    Hi Sweetie,
    Look this over for Malilk and let me know what you think. I love you will call you in a few. My 314 phone # needs to be charged, the other phone sucks.

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