Sickle Cell Warriors

Articles

 Breaking News

Transitioning from a Teen to an Adult with Sickle Cell

What happens when your child becomes an adult? In most hospitals, once the child becomes 21, he/she is no longer admitted into the Children’s Hospital, but directly speech on pollution in english into the main hospital and the adult cheap viagra canada population. This period can be very difficult and harsh for the youth, because instead of the warm bubble of support they are used to, they are now stripped of all that support and essentially are thrust into a whole ‘nother world, one which many are ill prepared for.

The pediatric programs across the country are flourishing, but the adult sickle cell programs for the most part are broken. Pediatric programs have outings, support groups, camps, and much more. Adult groups have support groups meetings, and a yearly retreat if you are lucky.  Some pediatric patients see their pediatrician even  after they turn 18, and some even beyond 21. In many, the adjustment is not made properly and the youth suffer many repercussions because of this.  The focus of my project is helping sickle cell warriors ages 16-21 successfully transition into the adult population. My transition was not difficult as most are although I have seen very difficult transitions with very bad outcomes.

The goal of a parent is to prepare your child or youth for independence and success as an adult patient with sickle cell disease.  Your teen will leave home eventually, they will grow up, and as a good parent; you want them to be well prepared.

There are many reasons why youth and teens have difficulty transitioning into the adult system, and the first part of this series will explore some of them. What makes the transition from a child with sickle cell to an adult with sickle cell is:

  • The lack of support young adults received from their support group, compared to what they received previously.
  • Actually having to talk to the doctor when in crisis (when their parents did this before)
  • Lack of decision making skills, because their parents did this previously
  • Lack of knowledge about their illness.
  • Parents who are pushy and unable to let go.
  • Physicians who will only talk to the parents, and not the teen
  • Taking responsibility for their care: Young adults think if they feel good they don’t need to keep their doctors’ appointment, or the specialist appointments. This happens often with college students and those in their twenties.
  • Loss of insurance as they become an adult.  My daughter although in college was unable to be covered by our insurance once she reached a certain age. President Obama has changed this, but it has not happened yet. It’s a part of the health care plan.
  • Lack of self confidence and maturity.

Knowing these reasons, take a moment to think about how you can you help your child become more successful?

Editor’s Note: **For starters, education is the most vital part of the transition. Your child should be as knowledgeable as the disease as you are, especially the older they get. You need to instill in them the fact that they are the ones with sickle cell, and not you. My mother always used to tell me, “One day Tosin, I am not going to be around to take care of you. What are you going to do then?” This statement in itself gave me the wherewithal to want to learn more about sickle cell, because I knew I was going to move out, leave home and go off to college one day.

There are teaching moments in all the interactions you have with your children. You might be used to cooking healthy meals for them, but are you discussing the reasons why? Have you explained all their medications to them and why it’s important? Although your teen might scoff at you and say, “Mom, I already know that,”, you still must press on and teach them about the intricacies of this disease.  They must want to learn, because without that desire, they cannot be self-empowered.

For more tips, check into the 2nd part of the series. April will conclude with insightful and successful transition tips.

Related posts:

Tags
Share

About Author

April Farrell-Hasty

April Farrell-Hasty

I am first and foremost a patient with sickle cell anemia. I chose to treat my illness more holistically. I have been a vegetarian for more than 25 years. I use homeopathy, accpunture, along with allopathic medicine.

I have volunteered with the sickle cell foundation for decades. Working as a mentor and working with parents whose child was just diagnosed with sickle cell. I have also worked with teens who were aging out of peadatric sickle cell and not quite ready for the adult group. Because they were off to college. I’ve also talked a few over protective parents of sickle cell kids into allowing their child to go away to college. I’ve organized sickle cell retreats.

I train yoga teachers and teach yoga. I specialize in restorative yoga. I chose to work with people who need yoga. People with chronic illnesses, people who have a lot of stress. I feel people who are chronically ill need yoga to help manage the illness. I teach patients with all types of disease, and yoga has helped them maintain or get better, rather than getting worse. Most chronically ill people get worse. Yoga helps ease the stress of illness, and learning to breathe properly helps manage pain. It has proven to be very beneficial for people with fibromyalgia, arthritis, sickle cell anemia, and other illnesses. Restorative yoga helps maintain homeostasis.

I also teach more physical types of yoga. I have certifications in personal training, wellness. I am a reiki master.
www.peacefullotus.com.

Related Articles

5 Comments

  1. kemi
    kemi August 07, 03:03

    thanks i am going to college very soon and i am nervous because with sickle cell you never know what to expect, but my little sister is constantly telling me how i am too immature to go to college.

  2. Sickle Cell Warrior
    Sickle Cell Warrior August 08, 02:27

    @Kemi, I matured in college. That is what college is for; you find yourself, get your independence, and learn to be on your own. Don’t let your fears stop you.

  3. Ms. Sheree
    Ms. Sheree August 08, 13:12

    Kemi,
    Don’t worry about being “too immature”. Being away at college helps “put hair on your chest”- lol,yes even if your a female but the important thing is to listen to your body. If you don’t know your triggers for a sickle cell crisis, now is the time to tune into your body and start noticing patterns. Ask your family if they see any patterns. While your in school, make sure you build support. Whether it’s with old friends, new friends or the Disability Support Office at the school, which I would strongly advise! As strong as I tell myself I am even in the face of a crisis, I did need help at times!
    FYI, LOL- My biggest supports during my college years were my friends who were in the nursing/physician programs, human behavior programs, my fellow social workers, my best friends-from a far- and a wonderful boyfriend who wheeled me around the campus for four months when I couldn’t walk!

    Remember this as you go away to college, keep focused on your health first, your school work second and have healthy fun!

    I wish you all the best and good luck!

  4. Sickle Cell Warrior
    Sickle Cell Warrior August 08, 15:49

    @Sheree, great response! Thank you:)

  5. kemi
    kemi August 12, 18:37

    Thank you all so much @Ms.Sheree that was an inspiring story hope to do as well as you inspiring ladies thank you!!

Write a Comment

Donate

Support awareness & education for SCD

Announcements

Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
You will receive info about the sessions on the advocacy training classes
Read more here: http://sicklecellwarriors.com/classes/
* = required field
Interested in local meetups?




powered by MailChimp!

Join us on Facebook!

Archives

Tweets!

have data = false

This is a demo store for testing purposes — no orders shall be fulfilled. Dismiss