Sickle Cell Warriors


 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Today’s Post

Hello everyone,

This year, I want to start a spotlight series for people with sickle cell all over the world. It will be a weekly thing, and I will just send an email with questions for you to answer. I know from the feed reader that we have readers from Zambia, Nigeria, India, UK, China, Sudan, Saudi Arabia, Brazil, Fiji etc….so this trip across the globe will help other sickle cell warriors see how living with SCD works in your neck of the woods. If you would like to share you story, please send me an email!

If you haven’t joined the SCW Facebook page yet, come join us! The warriors on here are so awesome, and there are so many other resources for us to share.

To all those that have contacted me about Nicosan, or checked out the usual spot for the Paypal link…I took it off because presently, I’m completely out of stock. I’m trying to get my hands on a few more boxes, but Nicosan is super scarce in Nigeria ever since the company stopped production last year.

Several people are working hard and long hours to get the company up and running again. We just need your prayers and well wishes that whatever the impediment blocking the resurgence of Nicosan, that it will be removed!

I’m super nervous because I’ve experienced life without major pains for almost 1.5 years. I think that I will be an emotional wreck in a couple of weeks…I can already feel the minor pains twinging. Those wicked sickle cells are probably rejoicing since they get to wreck havoc on my body yet again. I guess this is the story of our lives…

As soon as I get my hands on a box, or 2 or 10…I will of course let the group know.

I hope everyone is doing well, and handling the winter as best as you can. Many sickle cell warriors took ill over the holidays (due to the stress, change in weather, colds, flu etc.) To all those that are ill, I wish you speedy recovery. My thoughts are with you all…and I’m sending you warm hugs.


About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

Related Articles


No Comments Yet!

There are no comments at the moment, do you want to add one?

Write a comment

Write a Comment

This site uses Akismet to reduce spam. Learn how your comment data is processed.


Support awareness & education for SCD

WordPress › Error

Error! Donation amount must be a numeric value.