Sickle Cell Warriors

Tag "Parents and Caregivers"

    How to Help those Affected by Sickle Cell Disease

How to Help those Affected by Sickle Cell Disease

Friends, partners, and family with a sickle cell warrior often wonder, what can they do to help? Here are a few tips to set you on the right path.

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Fighting For Your Rights in the Hospital

SCW expounds on what to do when you have been treated badly by a nurse or doctor in the hospital. Know your rights and take control of the situation!

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Sickle Cell Scholarships

Wondering about scholarships for sickle cell patients? SC Mom Kristina did the research for you. Click here for a list of active scholarships for sickle cell students.

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How I Endured Sickle Cell Pregnancy on Bed Rest

Paula is a new mom who has sickle cell that is sharing her experience with everyone. I hope this helps all the new moms and moms-to-be out there.

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Sickle Cell and Social Security Benefits

Understanding the social security system is crucial to getting your benefits. Hear some tips on how to get approved based on info from the social security administration.

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Signs of Sickle Cell Pain in Babies

How can you tell if your baby is having sickle cell pain or a crisis? SCW breaks down the 13 signs…

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I Am the Incredible Hulk!

With Sickle Cell, sometimes you can easily get discouraged. Tamera expounds on her Warrior journey from weakness to strength

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Meet Tarsha: Mom, Wife, Warrior

Tarsha is a lovely mother, with a strong faith, determination, and indomitable spirit. Read her story here.

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Meet Brandin: Behavior Specialist, Father, Mentor, Warrior

Brandin is an amazing, dedicated, and focused young man who has managed to zero in on his purpose in life.

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    The Pros and Cons of a Port-a-Cath

The Pros and Cons of a Port-a-Cath

After 5,489 needlesticks and IV starts, you have finally made a decision to get a Port-a-Cath. Here’s the 4-1-1 from other warriors like you.

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Making the Team

Tamara details the importance of screening all members of your healthcare team— especially your doctors. Tryouts and Probation is mandatory, not optional.

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Coping Strategy: Writing

Tamara gives us the best coping strategy for a Warrior, parent, or caregiver dealing with a chronic medical condition. Write it down!!

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    From the Heart of a Warriors’ Caregiver

From the Heart of a Warriors’ Caregiver

Tamara is an independent, strong, beautiful woman who is head over heels and happily married to her own true Sickle cell warrior. Read about her journey from a wide-eyed novice to his staunchest advocate and expert at the bedside.

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Water of Life

Water is one of the cornerstones of a healthy sickle cell patient. There is no substitute to water.

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Direct Admit: An Alternative to the Emergency Room

Why not just skip the rigors of the emergency room altogether? Try the direct admit system. It’s like concierge medical care.

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Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

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