a community of those living, loving and surviving Sickle Cell Disease
Meet Jazzlind: Daughter, Student, Girlfriend, Warrior
Meet Jazzlind: Daughter, Student, Girlfriend,…
Posted 59 days ago

This week's warrior is Jazzlind. She's a 15 year old full of spice and life, and she has candidly opened up about her experiences with sickle cell.

Meet Jazzlind: Daughter, Student, Girlfriend,…
Meet Akimie: Artist, Runway Model, Warrior
Meet Akimie: Artist, Runway Model, Warrior
Posted 86 days ago

Ever wondered if you could be a working model in NY with sickle cell? If Akimie can do it, so can you!

Meet Akimie: Artist, Runway Model, Warrior
Success Begins with You!
Success Begins with You!
Posted 89 days ago

Tosin explains how you can have a successful and happy life with sickle cell. Once we shift our mentality, we all can achieve all our goals and dreams.

Success Begins with You!
Meet Clarissa: The Warrior Behind of HeartofGold.org
Meet Clarissa: The Warrior Behind of HeartofG…
Posted 89 days ago

The creator of the Heart of Gold foundation shares her inspirational journey with sickle cell below. Read on...

Meet Clarissa: The Warrior Behind of HeartofG…
Meet Kandis: Mom, Nurse and Warrior
Meet Kandis: Mom, Nurse and Warrior
Posted 90 days ago

Meet Kandis, an intrepid and determined young lady. Even with AVN and sickle cell, she has accomplished all her dreams and strives to inspire others.

Meet Kandis: Mom, Nurse and Warrior
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Tosin's Corner

Checking In…

Checking In…

Hello everyone, It’s been a few months since I posted on here. First of all I need to apologize for the silence. I know that it may have been very frustrating to come here with no new updates. Since October, I’ve faced alot of challenges [continue reading...]

Setting Goals

Setting Goals

For those of you who haven't zeroed in on your purpose in life, this is a great exercise when you have the time. Often we have 'mental lists', but an actual physical list gives you something concrete, something that you can check off, and something [continue reading...]

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Posts Tagged ‘Hydroxyurea’

Taking Nicosan and Hydroxyurea

Taking Nicosan and Hydroxyurea

I got a question today that I couldn’t answer. Has anyone taken Nicosan WITH Hydroxyurea? Did you notice a difference? Have you had any side effects? Please share your story, either via comments or through my email. Thanks! [continue reading...]

Hydroxyurea…for those who like it…

Hydroxyurea…for those who like it…

I got this from one of my readers and decided to share this with everyone. It was on the comnparison of Nicosan versus Hydroxyurea post. I know that this blog might have become a one note wonder because Nicosan has worked miracles for me…I mean, it’s almost 10 months and counting with no pain, crises [continue reading...]

Hydroxyurea vs Nicosan

Hydroxyurea vs Nicosan

Jay sent me a question that I think some other people might have. So we are going to do a comparative analysis on the two medications My doctor recently put me on Hydroxyurea. I was hesitant taking it because of the long term side effect of leukemia, but in the end I took it. I’ve [continue reading...]

Pregnancy & Contraceptives with Sickle Cell

Besides abstinence, what are the best contraceptive choices for a sickle cell warrior? For men of course that would be the condom, but for the ladies, with all the choices out there it gets a bit more complicated. You don’t want to try anything that is too heavily based on hormones, because they have a [continue reading...]

Hydroxyurea & Infertility

Now my doctors are trying to get my on Hydroxyurea like hardcore. I’m still scared about it. I know some people have used it with lots of great results, but those side effects are no joke—AND NOT BEING ABLE TO HAVE CHILDREN?? That is some crazy shit. Well, the main thing is that if you [continue reading...]

Why I Don’t Take Hydroxyurea

Why I Don’t Take Hydroxyurea

Last year, after numerous bouts of falling sick, my doctor practically ordered me to give Hydroxyurea a shot. Also known as Hydrea, this is one of the medications that has been known to reduce the incidence of sickle cell crises’. When she explained it to me, it sounded good, but as soon as I had [continue reading...]

Sickle Cell Medication & Drugs

I hate taking pills. I absolutely detest them. I can take them one by one, swallow them whole, but nothing gives me an enjoyment in the process. Taking pills just reminds me that I’m sick. When I’m being honest, I must say that I really don’t take meds unless I’m in pain. When it comes [continue reading...]

Announcements

Highlighted SC Events

  • Worldwide: UN Sickle Cell Awareness Day!! on 06/19/2012
    in 31 days and 09:47 hours.

Featured Warrior

Interview with a Medical Doctor with Sickle Cell Disease

Interview with a Medical Doctor with Sickle Cell Disease

Ever wondered if you could be a doctor with sickle cell? Well you can follow that dream. Dr. Y. explains to us how she went through medical school and became a physician. [continue reading...]

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