Sickle Cell Warriors

Tag "Diary"

Near Death Experiences with Sickle Cell

I’m sure many sickle cell warriors can relate to having near death experiences. I’ve been deathly ill a quite a number of times, but out of those numerous admissions, only once can I quantify as being near death. The first was in 1993. I had Malaria, Cholera and Pneumonia when

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Happy Birthday

Happy Birthday to me! 29 years and still living! WOOHOO!

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Mission Statement

The blog is entitled Sickle Cell Can Kiss My A** and it is a positive and yet progressive platform for me, a sickle cell patient and advocate to explore all realms of thought into sickle cell. There is so much that sickle cell warriors go through (I refuse the term

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Message

So September is Sickle Cell Awareness Month…I’m sure many of you already know. I’ve been out of the SSA loop for a minute but so many of my readers are going through crises right now that it’s breaking my heart. I’m sending warm hugs via cyberspace to everyone that is

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Juneteenth

Happy Juneteenth everyone! I’m up bright and early because Norio is in charge of organizing the music for the Juneteenth festivities here in Portland. On top of that, he’s also performing! It’s going to be a fun, interesting day… Hope it doesn’t rain!

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And the War Goes On…

Hello darlings, I’m back in action! Oh yeah baby!!!:) Seriously though, being sick totally sucks. I don’t want to have another crises for a loooooong, looooooooong time. I’m not even shooting for a year anymore, I just wanna be 100% crises free. So my visit to the ED totally sucked

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363 days….

Where do I begin? I’m living in Santa Barbara, the site where the Jesusita fires were burning fiercely a mere 2 days ago. Thankfully the fires have now been contained. It started last Monday, and by Thursday, the fires were raging out the control, the city evacuated. Heads up, if

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April Fools Joke..not cool

Hello darlings, In the interest of full disclosure, I must state that I had pain this week. I actually had to call off of work on April 1st. The pains started as they normally did, twinges here and there, L1s, nothing major, and I ignored them, thinking it was a

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My Nicosan Story

Here is a question that I got from a reader on Nicosan that I would like to address: A friend of mine just started on Nicosan 12/12/08, due to lapse in medical coverage and not having monthly blood exchanges, he has been having severe pain every week, resulting in 2-3

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Checking in

Hey everyone, How is it going? I’ve been busy, working alot at the same time trying to ace my Statistics class….grrrrr, I totally hate it! So far I’m hanging on to my A average by the skin of my teeth, but it’s been a struggle, I’ve spent more time studying

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Announcements, Announcements, Announcements!

Hey everyone, If you have gotten your Nicosan shipment and would like to take part in a study regarding that documents the benefits of Nicosan please email me. I’m also interested in Hydroxyurea users or people that use other drugs and alternatives. I’m trying to conduct a pain survey that

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Changing the Image

Okay sickle cell warriors, it’s time for some frank talk. I’m sick and tired of hearing how lazy people with sickle cell are. I’m sure that the majority of us aren’t…but for some reason, the public has the notion that we are just milking ‘the system’ for our pain, are

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New Years

Happy New Year everyone! I hope this year brings much success, less pain and more love! Smooches!

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Road Trip!!!

So I just did a cross country road trip down 101. Whoever said people with sickle cell could not drive long distances obviously has never met me. I drove 997 miles from Portland, OR to Santa Barbara, CA…all by my wonderful, fabulous self! Much to the consternation of my parents,

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WOOHOO!

Happy Birthday to me! Okay, so here’s a big *womp,womp* to all the doctors that said I wouldn’t live past my 10th birthday. I’m 28! Nanananabooboo!

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Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

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