Sickle Cell Warriors

Tag "About Sickle Cell"

Variations of Sickle Cell

Since sickle cell is a mutation of a strand of chromosomes, there are several different strains or variations. Here are the five most commonly documented: Sickle cell trait: The person is carrying the defective gene, HbS, but also has some normal hemoglobin, HbA. Persons with sickle cell trait are usually

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The Sickle Cell Drug Addicts

I’m a nurse in a NYC public hospital and we have a cohort of patients w/SC who I see in the ED at least everyday or every other day. The hospital has a SC clinic but when it closes the patients come to the ED. They don’t have to wait

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Connecting With Someone With Sickle Cell

I just got off the phone with Milan, a reader from the blog who is the absolutely most fabulous chick I’ve had the pleasure of meeting with sickle cell. She’s like a young version of me, all spunk, feisty, full of determination, attitude, sass and heart. She’s actually what I

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People with the Trait Have Pain Too!

This is a comment from one of my readers that is 46 that has the sickle cell trait but not the disease. Some times I have unexplained pain in one of my feet, but it’s usually only when it’s cold, and after reading some of your blogs, I see that

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Dealing with Sickle Cell Without Using Drugs

My daughter who is 12 years old (has SS)is thinking about taking Hydroxyurea instead of getting monthly blood transfusions. If Hydroxyurea is not right for sickle cell people what other thing can they take or do if they don’t want the blood monthly? Do you know? First of all, know

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Avascular Necrosis

I’m worried about my hips. I’ve been reading lately about avascular necrosis of the hip and the more I read about it, the more I think I have it. From what I understand, the sickling of cells causes the blocking off of tiny cappillaries, arterioles and venuoles (a sickle cell

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I Have Bad Veins

One of the commonalities of sickle cell warriors is that fact that after a zillion hospital admissions and ER visits, eventually, our veins go into hiding from all the trauma. The medications that help us also help to scare the beejesus out of our veins as well as all those

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Sickle Cell & Cold

Today I was asked a question by a friend, “Which do you like better, hot or cold?” My answer was a vehement HOT! Not just because it’s so miserable being cold but mainly because when I’m cold for a period of time (like more than 20 minutes), I put myself

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10 Things Good About Sickle Cell

Okay, I’m not here just to whine and complain. So in the spirit of giving thanks, I’m listing the top 10 reasons I can think of why it’s great to be a sickle cell warrior. You get a free “get out of work” pass from school, work or home whenever

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Pain Can Kiss My Ass

Meet Elise…isn’t her attitude so fuckin’ incredible?

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Transmission of Sickle Cell

Okay, this is for all the ignorant peeps out there. No offense, but why the fuck do you think that you can get sickle cell from your boyfriend/girlfriend? It’s not an STD, it’s not contagious—it’s an inherited disease. Inherited! This means that if your parents weren’t on the ball with

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Jaundice

I was looking at some pictures I took last week and man, I look so jaundiced. Ick! For those of you that don’t know, jaundice is a condition caused from the increased production of bile pigments in the blood. It usually affects people with all kinds of liver diseases but

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Sickler

Of all the words used for patients with sickle cell, the one that irritates me the most is Sickler. Grrrr! There is something about that word for me that makes me feel like an anathema, a blight or something out of the ordinary. Why can’t they just say…the patient, or

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Genetics & Causation

If you are a carrier of the sickle cell trait, it’s good to know this before you start falling in love and making babies. I will stress that it’s essential to know what your partner’s hemoglobin recessive gene is. Say you were like my parents, who are simply blissfully ignorant

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What is Sickle Cell?

Okay I know alot of you are probably wondering, what the flip is sickle cell? Here’s my shortened personal version that should give you the skinny. First of all, if you have the sickle cell trait, it means you are a carrier of the gene but don’t have the disease.

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From CT Sickle Cell Org---my favorite SCD PSA.

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