Sickle Cell Warriors

Tag "About Sickle Cell"

Sickle Cell & Pity

Here is a great question at the Sickle Cell Ning Forum. Why is that when you go into a crisis people tend to give you weird looks and have pity for you? We don’t need pity but support… I think people offer pity what they do not understand something. Like

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Nicosan Testimonial

One of my readers who has been on Nicosan for about a year now, has written this wonderful review that I would like to share with everyone. If anyone else has a Nicosan story that they would love to share; good, bad or indifferent; please send it my way. Also,

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Mission Statement

The blog is entitled Sickle Cell Can Kiss My A** and it is a positive and yet progressive platform for me, a sickle cell patient and advocate to explore all realms of thought into sickle cell. There is so much that sickle cell warriors go through (I refuse the term

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My Nicosan Story

Here is a question that I got from a reader on Nicosan that I would like to address: A friend of mine just started on Nicosan 12/12/08, due to lapse in medical coverage and not having monthly blood exchanges, he has been having severe pain every week, resulting in 2-3

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Changing the Image

Okay sickle cell warriors, it’s time for some frank talk. I’m sick and tired of hearing how lazy people with sickle cell are. I’m sure that the majority of us aren’t…but for some reason, the public has the notion that we are just milking ‘the system’ for our pain, are

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I got an A!

Hey, I just got my grades for this last semester. I rocked out y’all! My GPA is 3.9 and I’m still banging out straight A’s. Oh yeah, oh yeah *jumping up and down* Anyway, in the spirit of giving, sharing and all that Jazz, I’m going to host the sickle

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Variations of Sickle Cell

Since sickle cell is a mutation of a strand of chromosomes, there are several different strains or variations. Here are the five most commonly documented: Sickle cell trait: The person is carrying the defective gene, HbS, but also has some normal hemoglobin, HbA. Persons with sickle cell trait are usually

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The Sickle Cell Drug Addicts

I’m a nurse in a NYC public hospital and we have a cohort of patients w/SC who I see in the ED at least everyday or every other day. The hospital has a SC clinic but when it closes the patients come to the ED. They don’t have to wait

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Connecting With Someone With Sickle Cell

I just got off the phone with Milan, a reader from the blog who is the absolutely most fabulous chick I’ve had the pleasure of meeting with sickle cell. She’s like a young version of me, all spunk, feisty, full of determination, attitude, sass and heart. She’s actually what I

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People with the Trait Have Pain Too!

This is a comment from one of my readers that is 46 that has the sickle cell trait but not the disease. Some times I have unexplained pain in one of my feet, but it’s usually only when it’s cold, and after reading some of your blogs, I see that

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Dealing with Sickle Cell Without Using Drugs

My daughter who is 12 years old (has SS)is thinking about taking Hydroxyurea instead of getting monthly blood transfusions. If Hydroxyurea is not right for sickle cell people what other thing can they take or do if they don’t want the blood monthly? Do you know? First of all, know

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Avascular Necrosis

I’m worried about my hips. I’ve been reading lately about avascular necrosis of the hip and the more I read about it, the more I think I have it. From what I understand, the sickling of cells causes the blocking off of tiny cappillaries, arterioles and venuoles (a sickle cell

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I Have Bad Veins

One of the commonalities of sickle cell warriors is that fact that after a zillion hospital admissions and ER visits, eventually, our veins go into hiding from all the trauma. The medications that help us also help to scare the beejesus out of our veins as well as all those

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Sickle Cell & Cold

Today I was asked a question by a friend, “Which do you like better, hot or cold?” My answer was a vehement HOT! Not just because it’s so miserable being cold but mainly because when I’m cold for a period of time (like more than 20 minutes), I put myself

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10 Things Good About Sickle Cell

Okay, I’m not here just to whine and complain. So in the spirit of giving thanks, I’m listing the top 10 reasons I can think of why it’s great to be a sickle cell warrior. You get a free “get out of work” pass from school, work or home whenever

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Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

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