Sickle Cell Warriors


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Sweet Remedy!

Sweet Remedy!


Today many pharmacies have prescription flavoring options for parents to get their children to take their medications.  As a baby, Z4 had no problem taking her penicillin, however, as she got older and was hospitalized taking those medications by mouth was not happening.  She would refuse, spit it out and just have a tantrum.  We’d often have to hold her down not only to take her medicine but to even get an IV in her arm too.  So I’m not going to say the success of her taking her medicine now is my success story or do to flavoring either.  Instead, I’m going to tell you the truth of the matter is I turned to the only expert I knew and that was my lovely mom.

My deaf mother raised three kids who all had Asthma really bad and during those times there was no prescription flavoring options for us.  My mom had her own methods to get us to take it that worked 100% of the time.  So after holding Z4 down a few times, I asked my mom for help.  She told me to let her take over a few days and she would solve this problem.  My mom came the next day with a jar of grape jelly, strawberry jelly, a large bottle of orange juice, and one cup of banana pudding and one cup of grape Jell-O and promptly told me to leave. 

Her plan was to give Z4 a baby spoon full of one of these sweet remedies of her choice after taking the medicine successfully.  My mom studied to be a nurse so she knew the medicines that had a strong bad taste and others that didn’t.  So my mom would suggest to Z4 which one to try to get rid of the taste the best and of course because Z4 loved Granny so much, she’d listen.  The doctors had no complaints because my mom used a baby spoon to give her whatever sweet remedy chosen.  The most my mom would give her too was 2 spoons full because she knew from experience what it took.  Afterward, she would teach Z4 how to say in Sign Language; I am smart and strong! 

I returned the next day and witnessed her taking her medicine and asked my mom what happened.  My mom smiled and told me she did what worked with us taking our Prednisone all those years.  I just laughed and hugged her.  And although, Z4 is now 5 and no longer needs the sweet remedies for bad tasting medicine; she still says “Remember Mommy, I am smart and strong” in Sign Language!”  I would sign back to her; “You sure are, baby! And Granny would be so proud of you!

About Author

Elle Jenae

Elle Jenae

My name is Louisetta Williams and I’m a proud single parent of a 4 beautiful girls ages 18, 13, 8, and 5. I love to refer to my daughters as my Z-babies because all their names start with a “Z” and online I often call them Z1, Z2, Z3 or Z4 in accordance of their birth order. My youngest Z-baby is 5 years old and she is my Sickle Cell Warrior. I work as a research assistant at the American Academy of Pediatrics where we research diseases that affect children all over the world. I love my job because our research helps enhance children’s health worldwide. My passions outside of work are reading, doing family activities, going to church, writing and helping people in any way I can. I wanted to write for Sickle Cell Warriors because I want to be the voice for parents who fight for their Sickle Cell Warriors daily. I believe by sharing my experiences, research and testimonies of how I cope with dealing with an ill child; I can help someone. I want to be an advocate for SCD parents who sacrifice so much and let them know that it’s okay to be perfectly imperfect.

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