Sickle Cell Warriors


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Success Begins with You!

This comment was posted on the Sickle Cell Warriors Facebook page. Reading this instantly made me get on my soapbox and triggered a whole line of thinking for me.

“The life of a sickle cell sufferer is a very challenging one. I woke up this morning 5am in preparation for work feeling pains in my elbow joint and knees. I quickly took some pain reliever and a warm bath then, off I went to work. We work extra hard in comparison with the average healthy person to survive. I think I would have been a lot much successful, prosperous, fulfilled, richer and … if I never had sickle cell. Do you feel the same way too? Sickle cell kind of limits ones abilities.”

I don’t feel that way. I feel that sickle cell does pose some challenges for us; but it does not make having a good life impossible. 

We may have to find creative ways to achieve our goals, it may take more time and perseverance, but if you really want something and it is your destiny, NOTHING can stand in our way.
I have met those with sickle cell who are rich and successful, from all walks of life, who are doctors, lawyers, bankers and architects—who are married, having children, in love, and making their dreams happen.  I always love interviewing those with sickle cell. Because in each person there is a spirit of never giving up, and those featured in the Warriors in the Spotlight section always continually strive to do better and be better. Please let’s not use having sickle cell as an excuse or a handicap to bar us from our dreams. Everything is possible, we just have to never give up, be prepared to work hard, and don’t quit just because we fall sick.

I don’t refer to myself as a sufferer. I am not suffering, I am not miserable, I am not hopeless. Everyone has challenges, and having sickle cell is my challenge. I am living, loving and surviving. I am a warrior…everyday I get up and fight for my dreams and goals. I may have pain today, and be in a full blown crisis tomorrow, but that is just a battle. It doesn’t define my whole life. When I feel good and am not sick, then I still press on, like a true soldier would. We have to change our mentality and stop feeling sorry for ourselves. A pity party does not get you anywhere—in fact, it just keeps you stuck in the same situation that you are in. Every goal is possible, we may have to modify it a little, or find a creative way to make it happen…but NOTHING is impossible with God.

Please let us shift our mentality. It’s okay to vent and be frustrated with the problems and issues in our lives once in a while, but enough with the constant complaining and pity parties already! Every human  being has a challenge, even those without sickle cell. It may not be a medical condition, it could be a family situation, problems with finances, issues with a relationship or another health problem. Life is full of challenges and problems and everyone has them. That is what life is about…dealing with your challenges, learning from them, and becoming a better person through each adversity.

I hope that you find this forum a learning experience. Please let us not use having sickle cell as a crutch or excuse of the reason why we are not achieving and succeeding. The only thing standing in the way of your success is YOU! List out your goals and dreams, and start doing your research. Find a way to make each dream a possibility. Take your time, and even though sickle cell may slow you down…never, ever, ever give up! You can do it. If I can do it, if they can do it–so can you.

About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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  1. M. Liptrot
    M. Liptrot February 20, 20:36

    I felt like I was reading my own words! I truely believe in your words. We must STOP letting scd control our lives and go after your dreams. No matter who you are you have some kind of challenge. I remember my mother saying to me if I can’t do it that way then find another way to do it and I did. You may have to adjust your path but you can achieve your goals with the desire, hard work and persistance. Keep Striving!

  2. NinaG
    NinaG February 28, 11:36

    “I don’t refer to myself as a sufferer. I am not suffering, I am not miserable, I am not hopeless. Everyone has challenges, and having sickle cell is my challenge. I am living, loving and surviving.”

  3. kemi
    kemi March 18, 07:38

    Hi! I want to go to the american university of paris! However, its in Paris and I am from the south I know it would be freezing cold do you know what I might have to do, in case I get a crisis over there? Like health insurance stuff too. My parents will be miles away but I always wanted to live in Paris!

  4. Sickle Cell Warrior
    Sickle Cell Warrior Author March 20, 16:04

    Nina, Amen! That is my belief as well.

  5. Sickle Cell Warrior
    Sickle Cell Warrior Author March 20, 16:15

    @Kemi, do you live in America or UK now? With the cold, you mostly have to dress and keep yourself warm. I don’t know how the insurance system works over there, but they have a very strong Sickle Cell and Thallesemia Society that can probably be your best resource. Go to and find them on the map. There are also many tips and advice in our Living With Sickle cell section found at

  6. kemi
    kemi March 25, 16:42

    Thank you! I live in America!

    DIANNE May 23, 10:06


  8. Sickle Cell Warrior
    Sickle Cell Warrior Author June 03, 15:58

    Thanks Dianne! That is what we are here for. Hang in there, and thank you for being such a lovely supportive spouse.

  9. Rilwan
    Rilwan June 23, 18:03

    since almost one year
    now i haven’t sick or have any sickle crisis, i have visit many
    doctor but no solution but now, i thank GOD,
    the only solution which was giving is that
    their are so many food that is not good for
    sickle cell patient e.g any meal make from white flour, sugar, red meat etc which i have stop eating, so
    since then i have not visit any hospital for
    complain. Also try to stay away from artificial food and drinks. Eat food which cook by yourself not preserve food.

  10. Sickle Cell Warrior
    Sickle Cell Warrior Author June 28, 22:45

    Wow Rilwan, that is so amazing. So that change in your diet pretty much has saved you from a crisis in a year. I hope it continues to be this way. Thank you for sharing your journey! We are what we eat!

  11. dorcas
    dorcas July 23, 10:55

    Nice work guys. I have a friend who is very close to me he is ss while I am AA. I am 25yrs while he is 40yrs. . . .but my parents don’t even want to see him around dat people of his kind don’t live long after marriage. . . I want to be there for him,someone please advise me. . Thanks

  12. L. T.
    L. T. October 20, 09:06

    Thank you for the site. I was finally diagnosed with the disease , after four years of severe illness and physicians stating it was all in my mind. Thank you. Life is worth more than living to die.

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