Sickle Cell Warriors


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Stay Positive SCW Parents!

Stay Positive SCW Parents!

Zna happy smile 2013Stay Positive SCW Parents!

How we, as parents, cope with our children’s illness can affect them in a positive or negative manner.  We never want them to feel guilty for making us sad or hopeless.  Instead, we want them to know the battle is never over and no matter what; hope never ends.

Staying positive when your child is sick isn’t easy but not impossible.  It is vital not to wait until the hard times start.  Instead, practice being positive every day your child is well by constantly speaking positive things into the atmosphere.  For example, find something good in every situation.  Reading daily affirmations can also build up courage and faith so tensions will be low when your child’s crisis appears.  And when you feel you can’t be positive learn to pray without ceasing for strength, meditate, and relax.  If that fails phone a friend! Call someone that you know will encourage you. 

Keeping a journal is therapeutic! It gives the parent a chance to set free the emotions that your child shouldn’t see.  It’s extremely hard not to cry from all the pain you see them in but keeping it together in their presence will let them draw from your strength.   And it’s okay to cry but it’s not okay to have a total break-down.  Children are not equipped to deal with all the worries running through parents’ minds…and they are so many; from the doctor reports or effects of SCD on the family unit.

Educate yourself constantly on SCD on how to keep your stress down as well as your families’ stress.  Read about ways to improve your child’s health from diet to spiritual and emotional health.  Simply hugging each other daily can relieve stress. Even letting other siblings participate in making their sibling feel encouraged daily will take some pressure off of you as a parent.

Parents that make that choice to think positive will greatly affect their Sickle Cell Warrior.  The way we as parents live life impacts how our children will live their lives. 

We are our children’s first example of how to handle adversity in life. And life may not be perfect always but children need to know it’s okay to still be happy.

About Author

Elle Jenae

Elle Jenae

My name is Louisetta Williams and I’m a proud single parent of a 4 beautiful girls ages 18, 13, 8, and 5. I love to refer to my daughters as my Z-babies because all their names start with a “Z” and online I often call them Z1, Z2, Z3 or Z4 in accordance of their birth order. My youngest Z-baby is 5 years old and she is my Sickle Cell Warrior. I work as a research assistant at the American Academy of Pediatrics where we research diseases that affect children all over the world. I love my job because our research helps enhance children’s health worldwide. My passions outside of work are reading, doing family activities, going to church, writing and helping people in any way I can. I wanted to write for Sickle Cell Warriors because I want to be the voice for parents who fight for their Sickle Cell Warriors daily. I believe by sharing my experiences, research and testimonies of how I cope with dealing with an ill child; I can help someone. I want to be an advocate for SCD parents who sacrifice so much and let them know that it’s okay to be perfectly imperfect.

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  1. alicia
    alicia January 13, 00:15

    Thank you for that article,am a mother of 6 children 2 have have passed on and 3 have sickle cells,sometimes i think am the only one but everyday i come to this site it has really inspired me,what i have not done then i don’t know i read all research and i have given all types of medicinal herbs to my children which relaly help.i have written to government officials to sponsor me to get bone marrow transplant,sometimes i break down but i try not to show them and i pray a lot and cry a lot.

  2. Elle
    Elle January 22, 07:37

    Thanks Alicia, I truly understand and that is why I wanted to write for! It gives me an outlet to connect to others who go through the same thing as me. I cry alot too. The first 2 years, I cried nonstop. Keep yourself prayed up and around positive people & I will keep you in my prayers as you keep us in yours! Be Blessed, Elle J

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