Sickle Cell Warriors

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  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Sickle Cell and Endari

Endari has been FDA-approved and will be available in the US starting December 2017! Be sure to speak to your medical professional about Endari and how it can help you.

**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website.

Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine specially formulated for sickle cell disease. When taken as directed, it has been shown to reduce sickling. This is the first drug that has been FDA-approved for SCD in over 17 years! It will be available in the United States this month and hopefully in other countries soon in the new year. Your pharmacy can now order it through US Bioservices. If you haven’t already, to your doctor to get Endari ordered for you on your next visit.

 

http://www.empr.com/news/sickle-cell-disease-treatment-endari-l-glutamine/article/713232/

Sickle Cell and Endari - overview

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