Sickle Cell Warriors


 Breaking News
  • Genetic Testing for Families Genetic Testing for Families Affected by Genetic Recessive Disorders DNAcheckup is a fairly new non-profit organization geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Poem: Ode to Sickle Cell

A poem written by one of our Warriors in the Spotlight, Davinna Thrower. You can visit her blog for more poetry at

Ode to Sickle Cell

Sickle cell anemia does not bind me, it drives me
It’s covers with hurt allowing you to see and taste the freedom of health and when you least expect it makes you beg to be normal.
I am it’s keeper and though it hurts to live, I’d die not to
I was blessed with a gift and the only way to help others and appreciate life is to live with this curse
It reiterates the preciousness of simple moments…..
You live your life….and determine your choices…within this i have no choice…
You make me sit down and stand up, you make me cry and moan in pain
You make me worry that at any point something will happen…
You make me question my ability
You have been present my whole life and still i don’t know you. I can’t understand why you were given to me….to be riddled with me….to make me powerless against your power.
You tell me to expect the worse and I will
However you will not win…..
Blood cells eroded into the shape of death
Every breathe is a test
Like a stalker I will never be free of you…..
Like a curse….you can make me fall to my knees for you
Many go through life angry at what they don’t have, not knowing that because they are alive and healthy they have it all……This is my ode to Sickle cell..

About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

Related Articles


  1. Naya Marae
    Naya Marae June 29, 16:37

    I Love This

  2. M. Harry
    M. Harry September 04, 18:06

    I’m so glad I found this site. This poem accurately describes how I feel.

  3. bpph
    bpph August 10, 09:39

    NYC poem

Write a Comment


Support awareness & education for SCD


Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
You will receive info about the sessions on the advocacy training classes
Read more here:
* = required field
Interested in local meetups?

powered by MailChimp!

Join us on Facebook!



have data = false

This is a demo store for testing purposes — no orders shall be fulfilled. Dismiss