Sickle Cell Warriors

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 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Pain From a Shower

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Another sickle cell fun fact: taking a shower in the mornings may lead to a painful sickle cell crisis. Check out the video below and share your experiences.

About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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2 Comments

  1. Tolu
    Tolu November 12, 13:25

    So true. till date I hardly take early morning or late night shower if the water ain’t warm. People say I’m dirty but I understand why I do it.

    Reminds me of when I was an undergraduate and I told a nurse that I atimes prefer to sit under the sun in the morning then she laughed at me and started calling me “sun therapy”. it works for me and I just do it not minding what people say

  2. Marty
    Marty January 07, 17:56

    Marty
    I’ve recently started having pain crisis after a late night shower, and even in warm or hot water the pain comes, and hurts so awful. I count my blessings because I am now 62 years of age, diagnosed when I was 28, worked all my life – sometimes two full time jobs. So yes, even dealing with this awful disease, I am very Blessed..

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