Sickle Cell Warriors


 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Nicosan News

Okay, sorry I haven’t been posting in a while…real life has me in knots. But…I’m very heartened by all the wonderful emails I’ve been getting from everyone who has gotten their Nicosan and has started using it. I love hearing whatever feedback you have…and I’m sure that this will serve as an inspiration to others. So send in your comments!

From the time of diagnosis in May my daughter kept getting crisis after crisis. I’ll say about 4/5 in two months. It was mainly swollen feet and fingers. Took my baby for vaccination yesterday and did a blood test. HB came out at 13.3. The last had been 8. I am so excited. Soon as I got the news came home and went on my knees to give praise and Glory back to God. She has been on it [Nicosan] for a month now. The doctors here were very impressed with the blood results. I decided not to tell them when I started her on it because I didn’t want anyone to discourage me…NK

Rock on! That’s so great! Here’s one from another user with Sickle cell thallesemia…

He’s been on it for about a week now and we’re keeping a diary to mark his progress. There hasn’t been too much so far, of course, but we’re taking pleasure in the little things we’ve seen: mild to moderate pain at night, as opposed to mild to moderate pain all night and day. A little less yellow in the eyes. A bit more energy, not enough to run marathons, but enough to notice something different. Some things, however, have been strange. He has less pain in his bigger body parts, like legs and arms, but it’s moved to smaller parts like his fingers and knuckles. Even had one in his toe the other day, and he said that’s never happened. I joked that the remaining sickled cells were trying to hide wherever they could, since Nicosan is rebuilding all the bad stuff in him already, lol.~TM

So…what’s your Nicosan story?


About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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