Sickle Cell Warriors

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  • Genetic Testing for Families Genetic Testing for Families Affected by Genetic Recessive Disorders DNAcheckup is a fairly new non-profit organization geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Lifespan Predictions for Sickle Cell

Remember when the doctor told you or your parents that you should only live until 6…then it was 18…then it was 30? Well you have reached and passed that age, and you are still alive! So say NO! to the limitations placed on you by others…and  the ‘recommended’ age that the doctor or CDC wants to place on your life. Only God knows your number…until then, LIVE your LIFE!

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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2 Comments

  1. kemi
    kemi December 22, 18:10

    I heard stuff like that in a health magazine. I was 12, and I started bawling, my parents reassured me that I will live longer and to ignore that.

  2. Auntie
    Auntie December 02, 19:18

    Im posting this on behalf of my niece. She’s 23-year-old college student. We live in Mississippi. She was going to a community college but had to drop out because of a bad crises. She has plans on going back next month(january). My question to everyone id how did you balance school and sickle cell? How did you handle crises that required time at the hospital or bed? Does the school have to work with you under the ADA Act?

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